Home - Solve ME/CFS Initiative
561683450
1987
Glendale, CA 91206 USA
solvecfs.org
PlzSolveCFS
SolveMECFSInitiative
944435
Podobné organizace
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Podobná návštěvnost
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Pionýr, z. s. |
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České centrum pro investigativní žurnalistiku, o.p.s. |
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Podobně sociální sítě (47045)
Český atletický svaz54310 |
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Spolek Svobodné rádio49000 |
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Římskokatolická farnost Starý Rožmitál51000 |
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Římskokatolická farnost Hvožďany51000 |
Novinky
🚨 Action Alert: Medicare is proposing cuts that could block access to Peripheral Nerve Blocks, including treatments that people with ME/CFS and Long COVID are just beginning to benefit from. New draft policies from five out of the seven main Medicare contractors would restrict coverage for peripheral nerve blocks, including procedures like Stellate Ganglion Block (SGB) which many people with ME/CFS and Long COVID are just beginning to access for debilitating symptoms like brain fog, fatigue, and dysautonomia. Even if you're not on Medicare, this may impact you. Private insurers often adopt Medicare coverage rules, and once access is gone, it’s hard to get it back. 🗣️ Now is the time to speak up. 📬 Deborah Duricka, PhD, has created a step-by-step toolkit with: ✔️ Direct links to each Medicare contractor ✔️ Email templates for patients and allies ✔️ A breakdown of what's at stake 🔗 https://ow.ly/fQE350XfUjS (fb)
� Join Solve as we support the first-ever Infection-Associated Chronic Conditions (IACC) Case Competition this Friday, October 31st, at the University of Michigan Ross School of Business. This groundbreaking event is more than a competition — it’s a gathering of patients, caregivers, researchers, healthcare leaders, and advocates coming together to address conditions like: • Long COVID • ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) • POTS (Postural Orthostatic Tachycardia Syndrome) � Why Attend? • Hear from expert and patient panels sharing real-world experiences • Connect with patients, caregivers, clinicians, and innovators • Be part of the conversation to shape solutions for these overlooked conditions • Witness breakthrough ideas presented by top graduate student teams from across the country � October 31 | 9 AM – 5 PM � Hybrid Event: In-Person & Virtual Options Available � Location: Michigan Ross – Tauber Auditorium � Free to attend — registration required! Together, we can amplify patient voices and drive meaningful change. � Register here: https://ow.ly/KEtQ50X6tQ6 #LongCovid #ChronicIllness #PatientAdvocacy #HealthcareInnovation #PublicHealth #UniversityofMichigan #Umich #Advocacy (fb)
Poslední komentáře
This initiative is so important! It's vital that we raise awareness about ME/CFS and Long Covid. They deserve recognition and research! 💪 #SolveME #MECFSdetail |
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I'm so grateful for organizations like Solve M.E. that are fighting for better understanding and treatment options for those affected by these debilitating diseases. Let's support their mission! ❤️ #LongCovid #EndTheStigmadetail |
Poslední diskuze
1. What innovative strategies can NGOs implement to raise awareness about ME/CFS and Long Covid among healthcare professionals and the general public?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can we effectively advocate for increased funding and research into post-infection diseases, considering the current landscape of medical research priorities?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
16
40
4.5
Glendale
O společnosti
- 704, G99, H80, H01 -
Making Breakthroughs Possible The most prevalent diseases youve never heard of What are MECFS Long Covid. Myalgic encephalomyelitis ME formerly known as chronic fatigue syndrome CFS is a chronic complex neuroimmune disease that profoundly limits the health and productivity of patients and is often triggered by an infection. Long Covid describes a collection of lingering symptoms following COVID19. They are thought to be related as they both can follow infection and exhibit many of the same prevalent symptoms crippling fatigue postexertional malaise and cognitive dysfunction.
Nemoci, poruchy a lékařské disciplíny jinde neuvedené. Výzkum specificky pojmenovaných nemocí Alianční a advokační organizace