Help Us Understand the Full Picture of Rare Seizure Disorders! For individuals living with tuberous sclerosis complex (TSC), Lennox-Gastaut syndrome (LGS), or Dravet syndrome, seizures are only part of the challenge. Caregivers often face behavioral issues that are just as disruptive—and far less supported. That’s why Patient Journeys is launching The Behavioral Impact Project: Amplifying Caregiver Voices — a collaborative survey to gather real-world caregiver experiences with harmful or disruptive behaviors in rare seizure disorders. 🧠 Your input will help: - Create resources for caregivers managing behavioral challenges - Inform clinicians and researchers - Educate healthcare providers for better care ✅ The survey is confidential, takes just 20 minutes, and can help make a lasting difference. Take the survey today: https://ow.ly/URqz50WSfNb (fb)

Join Rajsekar R. Rajaraman, MD, MS and Shafali Spurling Jeste, MD for a TSC Regional Conference in Los Angeles, CA! This final conference in the 2025 TSC Regional Conference Series will take place on Saturday, November 8, 2025 at the UCLA Meyer and Renee Luskin Conference Center at the UCLA Los Angeles Campus. This conference is aimed towards individuals with tuberous sclerosis complex (TSC) and their caregivers, and will feature leading local researchers and clinicians specializing in TSC. Topics will include sessions across the lifespan of TSC, including: - Research updates, including upcoming clinical studies and trials for TSC - Managing behaviors in TSC-Associated Neuropsychiatric Disorders (TAND) and caregiver mental health - Genetics and family planning - Reproductive and perinatal health issues - Seizure types and treatments for children and adults - Kidney and skin involvement and treatment options Register here: https://ow.ly/Oe5f50WSfBi (fb)