COALITION TO CURE CHD2 INC
Cure CHD2
854057370
Dallas, TX 75225 USA
curechd2.org
curechd2
Podobné organizace
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Podobné organizace global
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Podobně sociální sítě (586)
Nadační fond Adopce památek587 |
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Stopy paměti z.s.587 |
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FbC Red Dragons Hořovice, z.s.587 |
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Poradna při finanční tísni, o.p.s.588 |
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Římskokatolická farnost Hejnice588 |
Více Shromažďování finančních prostředků a/nebo distribuce finančních prostředků.
MDA RIDE z. s.Praha |
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Nadační fond SrdcePraha |
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NÁBOR HRDINŮ, z. s. |
Novinky
🎉Coalition to Cure CHD2 has granted €100,000 to Dr. Nael Nadif Kasri to advance personalized medicine for CHD2-related disorders. He & Dr. Elly Lewerissa will explore a novel approach using antisense oligonucleotides to ⬆️CHD2 protein expression. More: https://t.co/Gaf3zsigCa https://t.co/fAPJKN2VHl (tw)
Huge thanks to incredible researchers & clinicians who participated in our CHD2 Research Strategies & Innovation Workshop last weekend! We're inspired by your commitment/collaboration & excited for future breakthroughs to advance understanding treatments of CHD2-related disorders https://t.co/1VNYaFaPII (tw)
Poslední komentáře
So grateful for the Coalition to Cure CHD2 and all the incredible work you're doing for our kiddos! Together, we can make a difference! 💙🐾detail |
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Thank you for advocating for families impacted by CHD2. Your commitment to research and support means the world to us! Let's continue to spread awareness! 🌍✨detail |
Poslední diskuze
- What strategies can be implemented to raise awareness about CHD2-related neurodevelopmental disorders in communities where resources are limited?Odpovědí: 3, Naposledy před 1 den detail |
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- How can the Coalition to Cure CHD2 effectively collaborate with researchers and pharmaceutical companies to accelerate the development of treatments for CHD2-related disorders?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Dallas
O společnosti
- H12 -
Research Community Needs Assessment Spring 2024 In late March 2024 the Coalition to Cure CHD2 reached out to CHD2 families to fill out a community needs survey. We received 140 responses from 22 countries and 26 states in the US. Learn More Facebook Support Group Support group for parents caregivers family members of childrenyouthadults who are affected by a mutation deletion of the CHD2 gene. Learn More Getting Tested How to Get Diagnosed Getting diagnosed for CHD2 typically involves a combination of genetic testing a review of medical history a physical examination a neurological examination imaging studies and EEGs to support the diagnosis and understand the effects of the mutation.
Shromažďování finančních prostředků a/nebo distribuce finančních prostředků.
