Pyruvate Kinase Deficiency International Alliance-Home
863075169
Wolverine Lake, MI 48390 United States
pkdf.org
Pyruvate-Kinase-Deficiency-Foundation-104748031691490
Podobné organizace
Pku Nowrthwest Alliance |
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PKD Foundation |
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Partners for Krabbe Research |
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SPOONBILL FOUNDATION |
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THRIVE WITH PYRUVATE KINASE DEFICIENCY ORGANIZATION |
Podobné organizace global
INTERNATIONAL NIEMANN-PICK DISEASE ALLIANCE |
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THE POLYCYSTIC KIDNEY DISEASE CHARITY |
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SRI LANKAN KIDNEY FOUNDATION |
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PKD Foundation of Canada / Fondation canadienne de la MPR |
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CDKL5 Canada |
Více z Wolverine Lake
Podobně sociální sítě (844)
Tělocvičná jednota Sokol Uherské Hradiště846 |
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Spolek rodičů a přátel školy ZŠ Ruská, Litvínov845 |
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Česká asociace bandy z.s.846 |
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Edukuj, z.s.845 |
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Blízký soused, z.s.846 |
Více Zdravotnické podpůrné služby
Oblastní spolek Českého červeného kříže LounyLouny |
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you connected, z.s.Karlovy Vary |
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Osmička Ústí, z.s.Ústí nad Labem |
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Tereza Centrum z.s.Tisá |
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Pečovatelská služba S NÁMI DOMA z.ú.Nejdek |
Novinky
Sign up for the *VIRTUAL* 3rd International Congress on Sickle Cell & Other Inherited Blood Disorders Congress, November 14-15, 2025. Topics will include #pyruvatekinasedeficiency. https://inheritedblooddisorders.world/congress-2025/registration-for-congress-2025 (fb)
June 14th is World Blood Donor Day, a day to honor those who have donated blood in the past year. Blood donors are a valuable source of life for women experiencing bleeding related to pregnancy and childbirth, children suffering from severe anemia due to malaria or malnutrition, supporting complex medical and surgical procedures, and for providing regular, lifelong treatments for people with hemolytic anemias like those living with sickle cell disease, thalassemia, hemophilia, and #pyruvatekinasedeficiency. They also play a critical role in natural disasters and emergencies. To make sure everyone who needs blood has access to safe blood, all countries must rely on a pool of voluntary, unpaid donors who give blood regularly. However, many countries face significant challenges in both availability and safety of blood supplies. This is especially true in low- and middle-income countries. This year's slogan is "Give blood, give hope: together we save lives." Do you have a story of the life-changing impact blood donation has made on you? Please share it, and this post, to your communities to thank them for the gift of hope. #donatebloodsavelives #bloodonorsarestars #thankyoublooddonors #donateblood #worldblooddonorday (fb)
Poslední komentáře
We are so grateful for the incredible work being done by the Pyruvate Kinase Deficiency International Alliance! 🌍 Together, we can make a difference in the lives of those affected by PK deficiency. Let’s spread awareness and support each other!detail |
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It's amazing to see how far we've come with the merger of our organizations! 💪✨ Excited to help enhance the quality of life for families facing PK deficiency and continue advocating for our community globally! #PKDIA #StrengthInUnitydetail |
Poslední diskuze
1. What strategies can the PK Deficiency International Alliance implement to improve awareness and education about pyruvate kinase deficiency in underserved regions globally?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can the merger of the Pyruvate Kinase Deficiency Foundation and Thrive with Pyruvate Kinase Deficiency Organization enhance advocacy efforts for patients and families affected by PK deficiency?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Wolverine Lake
O společnosti
- E60 -
Pyruvate Kinase Deficiency International Alliance Enhancing the quality of life for patients with PK deficiency and their families by providing awareness expanding education and promoting advocacy. Featuring Bridging the PK Deficiency Community We are proud to announce the merger of the two primary nonprofits serving the PK deficiency community Pyruvate Kinase Deficiency Foundation and Thrive with Pyruvate Kinase Deficiency Organization to one combined organization entitled Pyruvate Kinase Deficiency International Alliance PKDIA. Pyruvate kinase deficiency is an ultrarare genetic hemolytic anemia that affects people and families of all ethnicities from around the world. Knowing that families living with PKD have contacted us from Tibet to Australia Brazil to Canada we are excited to extend our work internationally with hopes of finding countryspecific PKD ambassadors.
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