Pyruvate Kinase Deficiency Foundation

Pyruvate Kinase Deficiency International Alliance-Home

The Pyruvate Kinase Deficiency International Alliance is an international nonprofit organization whose mission is to enhance the quality of life for patients and their families by providing awareness, expanding education, and promoting advocacy.
863075169
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Wolverine Lake, MI 48390 United States
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pkdf.org
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Pyruvate-Kinase-Deficiency-Foundation-104748031691490
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We are so grateful for the incredible work being done by the Pyruvate Kinase Deficiency International Alliance! 🌍 Together, we can make a difference in the lives of those affected by PK deficiency. Let’s spread awareness and support each other!
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It's amazing to see how far we've come with the merger of our organizations! 💪✨ Excited to help enhance the quality of life for families facing PK deficiency and continue advocating for our community globally! #PKDIA #StrengthInUnity
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Poslední diskuze

1. What strategies can the PK Deficiency International Alliance implement to improve awareness and education about pyruvate kinase deficiency in underserved regions globally?
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2. How can the merger of the Pyruvate Kinase Deficiency Foundation and Thrive with Pyruvate Kinase Deficiency Organization enhance advocacy efforts for patients and families affected by PK deficiency?
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Pyruvate Kinase Deficiency International Alliance Enhancing the quality of life for patients with PK deficiency and their families by providing awareness expanding education and promoting advocacy. Featuring Bridging the PK Deficiency Community We are proud to announce the merger of the two primary nonprofits serving the PK deficiency community Pyruvate Kinase Deficiency Foundation and Thrive with Pyruvate Kinase Deficiency Organization to one combined organization entitled Pyruvate Kinase Deficiency International Alliance PKDIA. Pyruvate kinase deficiency is an ultrarare genetic hemolytic anemia that affects people and families of all ethnicities from around the world. Knowing that families living with PKD have contacted us from Tibet to Australia Brazil to Canada we are excited to extend our work internationally with hopes of finding countryspecific PKD ambassadors.

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