Kcna2 Epilepsy Inc
Promoting Education and Awareness | Epileptic Encephalopathy
861894240
Broadview Heights, OH 44147 United States
kcna2epilepsy.org
KCNA2Epilepsy
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Podobně sociální sítě (477)
signály.cz, z. s.480 |
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INTEGRAČNÍ CENTRUM SASOV z.ú.479 |
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K PRAMENŮM, spolek480 |
Více Epilepsie
Společnost E / Czech Epilepsy Association, z. s.Praha |
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EpiStop z.s.Praha |
Novinky
Kcna2 Epilepsy in Las Vegas for the CZI workshop! We are working to move our organization and research forward!! #kcna2 #rareepilepsies (fb)
To our families around the world… Happy Earth Day Kcna2 (fb)
Poslední komentáře
❤️ Thank you, KCNA2 Epilepsy Inc! Your efforts are truly making a difference in the lives of families affected by this condition. Together, we can spread awareness and push for the research needed to find better treatments! 🌟detail |
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💪 I'm so inspired by the community you're building! It's amazing to see families supporting each other and advocating for more research. Let’s keep pushing for that cure and the awareness that is so needed! 🙌detail |
Poslední diskuze
1. What strategies can we implement to raise awareness and educate the public about KCNA2 epilepsy, considering its rarity and the challenges faced by affected families?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can we foster collaboration between families affected by KCNA2 and medical professionals to enhance research and develop more effective treatment options?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Broadview Heights
O společnosti
- G54 -
KCNA2 Epilepsy Global Support Community KCNA2 Epilepsy Global Support Community KCNA2 Epilepsy Global Connection Our Founding In March 2017 a parent support group via Facebookwas initiatedto connect parents and families from around the world who are affected by KCNA2 epileptic encephalopathy. Within five years over 75 families joined sharing theirchallenges and successes as caregivers for a loved one diagnosed with KCNA2. Collectivelywe identified a significant need for more advocacy research opportunities and effective treatmentinterventions. NancyMusarraandReneeSwannackcreated the KCNA2 Epilepsy Inc.
Epilepsie
