Kruzn for A Kure Foundation

Kruzn For A Kure Foundation | Funding SIOD Research

Kruzn For A Kure Foundation is a non-profit organization funding research for an extremely rare genetic disease & fatal type of dwarfism, #SIOD. Our mission is to provide life-saving research funding for children diagnosed with SIOD Our mission is to spread awareness about Schimke Immuno-Osseous Dysplasia, a rare and fatal form of dwarfism. We are dedicated to finding a cure, and showing support to those who have been diagnosed and battling rare diseases. While also fundraising to support research at Stanford University.
813843682
IČO
2016
Založeno
MUSCLE SHOALS, AL 35662 USA
Adresa
kruznforakurefoundation.com
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Kruznforakure
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KruznforaKure
Facebook (34000)

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Poslední komentáře

💙 Thank you, Kruzn for A Kure Foundation, for shining a light on SIOD and providing hope to families like the Davenports. Together, we can make a difference! #HopeForSIOD
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🌟 It's inspiring to see such dedication to finding a cure for SIOD! Let's rally together and support this vital research. Kruz and Paizlee are true warriors! 💪 #KruznForACure
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Poslední diskuze

1. What are some innovative fundraising strategies that NGOs like Kruzn for A Kure Foundation can adopt to raise awareness and support for rare diseases like SIOD?
Odpovědí: 3, Naposledy před 1 den detail
2. How can partnerships with universities and research institutions enhance the effectiveness of organizations focused on funding research for rare genetic diseases such as Schimke Immuno Osseous Dysplasia?
Odpovědí: 3, Naposledy před 1 den detail

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O společnosti

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Finding a cure for Schimke Immuno Osseus Dysplasia SIOD Our Mission Our Purpose Providing a place of hope for SIOD families Meet Our Founders We are the Davenport family. As you can see we have the two of the cutest kids on the planet with the sweetest personalities. Kruz Paizlee rarely meet a stranger but their life is different from others. On June 30th 2016 our son was diagnosed with a rare genetic and incurable disease called Schimke Immuno Osseous Dysplasia SIOD.

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