Shwachman-Diamond Syndrome Alliance Inc
Welcome to the Shwachman-Diamond Syndrome Alliance - SDS Alliance
844654297
2020
Woburn, MA 01888 USA
sdsalliance.org
CureSds
SDSAlliance
Podobné organizace
Diamond Blackfan Anemia Foundation |
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Cloves Syndrome Community |
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International Rett Syndrome Association, Inc. |
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Sdhb Coalition Inc |
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Lupus Life Alliance Inc |
Podobné organizace global
DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP UK |
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HAMILTON HEALTH SCIENCES FOUNDATION |
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Canadian CLN2 Foundation |
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Yellow Diamond Brain Cancer Foundation |
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M RIEWOLDT HOLDINGS LIMITED |
Podobně sociální sítě (954)
Orthodoxia Christiana o. p. s.958 |
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Hubbr, coworking Havlíčkův Brod, z.ú.955 |
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Nadace Josefa Plívy955 |
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Česká asociace pro sociální antropologii, z. s.957 |
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Spolek OBNAŽENI959 |
Více Vrozené vady, genetická onemocnění
DiaKar, z. ú.Karlovy Vary |
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Český institut biosyntetické psychoterapie, z.ú.Praha |
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Parkinson-Help z.s.Praha |
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Občanské sdružení Imunodeficitních pacientů HAE / AAE z.s.Brno |
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Hemojunior, z.s.Praha |
Novinky
Registration is now open for SDS POPS 2025. Link and agenda at https://t.co/gUZFBL4PQ9. We built the agenda with you in mind. Experts and industry leaders will weigh in on gene targeting therapies for SDS on Sunday, October 12, from 10 AM to 5 PM EST. Free. #CureSDS #SDSPOPS https://t.co/2Rwyp0wrX6 (tw)
Lot's of time to ask questions and connect. Don't miss it. (tw)
Poslední komentáře
❤️ Thank you Shwachman-Diamond Syndrome Alliance for your relentless dedication to advancing research and improving the lives of those affected by SDS! Together, we're making a difference! #CureSDSdetail |
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🌟 So grateful for the incredible work being done to support patients and families living with Shwachman-Diamond Syndrome. Let's continue to raise awareness and drive collaboration for a brighter future! #SDSAlliancedetail |
Poslední diskuze
What strategies can NGOs like the Shwachman-Diamond Syndrome Alliance implement to enhance global collaboration in rare disease research?Odpovědí: 3, Naposledy před 1 den detail |
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How can the experiences of families affected by Shwachman-Diamond Syndrome inform and shape the direction of future research and therapy development initiatives?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
1
10
4.5
Woburn
O společnosti
- G20 -
About Us About SDS News Events For Patients Families For Doctors Researchers More. ShwachmanDiamond Syndrome is alifethreatening condition. We save lives by developing new therapies. Join our network of patients families doctors and researchers working together to drive research and accelerate therapy development so that people with ShwachmanDiamond Syndrome can live their lives to their full potential.
Vrozené vady, genetická onemocnění
