CTNNB1 SYNDROME AWARENESS WORLDWIDE
CTNNB1 Syndrome | Ctnnb1.org
CTNNB1 Syndrome refers to complications resulting from either a mutation or deletion of the CTNNB1 gene. Our mission is to create awareness of CTNNB1 Syndrome; provide information about symptoms, diagnosis, treatments, and therapies; and connect affected families.
821953231
IČO
Dayton, OH 45459 USA
Adresa
ctnnb1.org
Web
ctnnb1org
Twitter (77)
Podobné organizace
INTERNATIONAL CHILDRENS ANOPHTHALMIA NETWORK INC |
|
Cohen Syndrome Association |
|
COALITION TO CURE CHD2 INC |
|
Tbc1D24 Foundation |
|
Tatton Brown Rahman Syndrome Community Inc |
Podobné organizace global
RARE CHROMOSOME DISORDER SUPPORT GROUP |
|
GENE PEOPLE |
|
TIMOTHY SYNDROME ALLIANCE (TSA) |
|
KLEEFSTRA SYNDROME UK |
|
Vcfs 22Q11 Foundation Inc |
Podobně sociální sítě (77)
Více Vrozené vady, genetická onemocnění
DiaKar, z. ú.Karlovy Vary |
|
Český institut biosyntetické psychoterapie, z.ú.Praha |
|
Parkinson-Help z.s.Praha |
|
Občanské sdružení Imunodeficitních pacientů HAE / AAE z.s.Brno |
|
Hemojunior, z.s.Praha |
Novinky
21 úno
ITS HERE! Our "Sibling Advocate Fill-In Design by Nadine" Shirt is now Available for purchase on Bonfire. https://t.co/QyZ0K3mNkP (tw)
21 úno
ITS HERE! Our "Sibling Love Design by Katy" Shirt is now Available for purchase on Bonfire. https://t.co/IBUif6a9IW (tw)
Poslední komentáře
Sending love and support to all families affected by CTNNB1 Syndrome. Together, we can raise awareness and provide hope! 💙 #CTNNB1Awarenessdetail |
|
I'm so grateful for the resources and community provided by CTNNB1 Syndrome Awareness Worldwide. Let's keep spreading the word and helping each other! 🌟 #StrongerTogetherdetail |
Poslední diskuze
1. What strategies can we implement to raise awareness about CTNNB1 Syndrome among healthcare professionals and the general public?Odpovědí: 3, Naposledy před 1 den detail |
|
2. How can support networks for families affected by CTNNB1 Syndrome be strengthened to ensure they have access to necessary resources and emotional support?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Reviews
Dayton
Místo
O společnosti
- G20, G84, G01 -
CTNNB1. org HOME More The first two facebook link requires acceptance to closedfacebook groups. The first is for parents only and the second is for extended family members. Site 20172020by CTNNB1 Syndrome Awareness Worldwide CSAW.
Vrozené vady, genetická onemocnění Autismus Alianční/advokační organizace
23 Vacancy
More Detail
