Life for Liam and Friends Foundation
Life 4 Liam & Friends | Life 4 Liam
934258441
Henderson, NV 89044 United States
life4liam.com
life4liam
Podobné organizace
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Podobné organizace global
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Podobně sociální sítě (33)
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MDA RIDE z. s.Praha |
Novinky
https://t.co/UWfwB8lzdF (tw)
CRISPR Gene Editing Trial for Primary Hyperoxaluria Type 1 (PH1) Arbor Biotechnologies dosed the first patient in their CRISPR trial for PH1 at Mayo Clinic. Well-tolerated so far—this metabolic gene edit could inform NPC therapies. Let’s keep pushing for cures! #RareDisease (tw)
Poslední komentáře
💙 Together, we can make a difference for NPC families! Every donation helps pave the way for research and awareness. Let's support the Life for Liam and Friends Foundation in this vital mission! #RacingToCureNPCdetail |
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🌟 So inspired by the work being done at Life for Liam and Friends! It’s heartwarming to see families come together and raise awareness for Niemann Pick Type C. Let’s keep pushing for a cure! 💪 #NPCAwarenessdetail |
Poslední diskuze
1. What innovative strategies can NGOs use to enhance awareness and educational outreach for rare diseases like Niemann-Pick Type C within local communities?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can we better support families facing the challenges of navigating medical research and treatment options for Niemann-Pick Type C?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Henderson
O společnosti
- G12 -
RACING TO CURENIEMANN PICK TYPEC Subscribe to our newsletter Subscribe me to your newsletter. The Life For Liam And Friends Foundation is a registered nonprofit charitable organization with the mission to support individuals and families who are impacted by Niemann Pick TypeC and helpthe world find a cure for this devastating disease through helping connect NPC families spreadingawareness educating the public and supporting medical research. For Medical Research Partnered With Donate Help Save Liam Donations Fund Research Development of a New Gene Therapy to Cure NPC Niemann Pick TypeC NPC is a rare fatal disease that attacks the Brain Nervous System and Organs. Often called Childrens39s Alzheimers the disease progresses rapidly from birth interrupting neurological development as the cells in the brain and nervous system die off.
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