The National Fragile X Foundation | NFXF
912018788
Olympia, WA 98502 USA
fragilex.org
nfxfoundation
916429
Podobné organizace
Fraxa Research Foundation, Inc. |
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Fragile X Resource Center of Missouri |
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Fragile X Association of Southern California |
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We Are Fragile X |
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THE PIERCE FAMILY FRAGILE X FOUNDATION |
Podobné organizace global
THE FRAGILE X SOCIETY |
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THE CHILDREN'S RARE DISORDERS FUND LTD |
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Fragile X Canada |
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Fragile X Association Of Australia Incorporated |
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Parents Of Children With Special Needs Inc. |
Podobná návštěvnost
Církev adventistů sedmého dne |
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Pionýr, z. s. |
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České centrum pro investigativní žurnalistiku, o.p.s. |
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SK HAMR, z.s. |
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DOBNET, z.s. |
Podobně sociální sítě (2714)
Uměleckohistorická společnost, z. s.2719 |
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SH ČMS - Sbor dobrovolných hasičů Vlašim2719 |
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Kanonýři Kladno, z.s.2726 |
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BIBLION z. s.2780 |
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BezDezinfa z. s.2780 |
Více Autismus
Za sklem o.s.Vizovice |
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DEBRA ČR, z.ú.Brno |
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Tady to mám rád, z.s.Mokrá-Horákov |
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Klub nemocných cystickou fibrózou, z.s.Praha |
Novinky
📢 Opportunity for Fragile X Caregivers Seeking 3 caregivers of children under 18 living with FXS (male or female) to share their story in a 1-hour virtual interview 💻 🗓 Interviews happening this month 💵 $100 "thank-you" Interested? 📨 Email christineb@charter.net (tw)
What is the Fragile X premutation? This 90-sec animated explainer breaks it down—what it is, who it affects, and why it matters. 🧬 🎥 Watch now: https://t.co/1OXTLnpcDb #FragileX #FXTAS #FXPOI #GeneticAwareness https://t.co/G1xO9mxJNk (tw)
Poslední komentáře
What an amazing initiative! Empowering families and raising awareness is so important. Together, we can make a difference for those affected by Fragile X! 💙✨detail |
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So inspired by the work of the Fragile X Association! It's great to see communities come together to support families and advocate for better resources and research. Keep it up! 🌟❤️detail |
Poslední diskuze
1. What strategies can the Fragile X Association of Washington State implement to better engage local communities in awareness and fundraising for Fragile X syndrome and its associated disorders?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can we leverage technology and social media to enhance support networks for families affected by Fragile X syndrome?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Olympia
O společnosti
- G84 -
The National Fragile X Foundation EMPOWERING The Fragile X community with knowledge resources tools and hope . What Is Fragile X Syndrome. Fragile X syndrome FXS is a genetic condition that causes intellectual disability behavioral and learning challenges and various physical characteristics. Though FXS occurs in both genders males are more frequently affected than females and generally with greater severity.
Autismus