Upequity Corporation
RareRising.org – Partners in Advancing Change for Rare Diseases
853253125
2020
Menomonee Falls , WI 53051 USA
upequity.org
RareRising_Org
RareRising
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Podobně sociální sítě (304)
Combat Mírov, z.s.305 |
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Janus, z. s.305 |
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TJ Touchovice, z.s.307 |
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Taekwon-Do ITF Pardubice, z. s.307 |
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KČT, odbor Napajedla305 |
Novinky
Did you know, two of the main challenges participants in our survey noted beyond the physical symptoms of their disease were barriers and gaps in healthcare access and challenges in communication between patients and providers? Download the full report from our website: https://rarerising.org/rarelab (fb)
We were excited to partnered with The Coalition for Hemophilia B on the “Health Equity in the Hemophilia B Community: Perspectives of Patients’ Report Findings” project! You can view the full report on our website https://rarerising.org/rarelab (fb)
Poslední komentáře
Incredible work, RareRising! Your dedication to supporting the rare disease community is truly inspiring. Together, we can bring hope and treatment options to those who need it most! 💙✨detail |
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It’s heartening to see organizations like RareRising making strides for those affected by rare diseases. Let’s work together to ensure that everyone gets the healthcare they deserve! #RareButNotAlone 💪🌍detail |
Poslední diskuze
1. What strategies can NGOs like RareRising implement to effectively raise awareness about the overwhelming lack of treatment options for the majority of rare diseases?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can collaboration between patient advocacy groups, researchers, and pharmaceutical companies accelerate the development of novel treatments for rare diseases?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
1
10
4.5
Menomonee Falls
O společnosti
- 414, E60 -
RareRising There is Urgency and Opportunity Rare diseases are defined by the FDA as diseases or conditions that affect less than 200000 people and impact more than 30 million Americans and over 400 million people worldwide. There are more than 10000 different kinds of rare diseases but very few less than 10 have options for treatment and many are lifethreatening. There is hope. In recent years significant policies systems and investments have advanced in rare diseases.
Zdravotnické podpůrné služby
