We have 7 days left in September....7 more days to have all donations matched up to $50,000 and we are so close! If you are able to make a donation please do so over the next 7 days to take advantage of our matching gift. Donations can be made here - https://idefine.networkforgood.com/projects/253202-ks-day-2025 Every donation makes a difference in the work we are doing at IDefine to help bring awareness to Kleefstra Syndrome, build community with our families and fund research to identify treatments and resources. Thank you for your continued support of IDefine! (fb)

💜Happy Kleefstra Syndrome Awareness Day!💜 We continue to celebrate our incredible community and the progress we've made together. We are so proud to announce a major milestone: our community has now registered over 1,000 patients on the worldwide map! This is a powerful testament to our growing strength and global unity. Key Accomplishments: 💜Hitting over 1,000 patients on the worldwide map! 💜Establishment of the Kleefstra Clinic at Boston Children's Hospital 💜Receiving our ICD-10 Code Q87.86 💜Building a thriving global community 💜Advancing down the research roadmap What's next? 🚀Developing additional centers of excellence for clinical care (both pediatric and adult!) 🚀Accelerating our mission towards a treatment 🚀Enhance community activations and fundraising to further our mission Join us in celebrating our strength and shared purpose. Thank you for being part of our movement! #KleefstraSyndrome #IDefine #RareDisease #KleefstraSyndromeAwarenessDay #1000PatientsStrong #CommunityStrong #HopeForACure (fb)