Collagen 6 Research Charity Inc
Research Fund | COL6 Fund | Sharon
844216554
Westport, MA 02790 United States
col6fund.org
col6fund
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Více Shromažďování finančních prostředků a/nebo distribuce finančních prostředků.
MDA RIDE z. s.Praha |
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Nadační fond SrdcePraha |
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NÁBOR HRDINŮ, z. s. |
Novinky
We invite you, your friends, and family will join us for a special reception at the historic New Bedford Whaling Museum in the Bourne Building, home of the legendary whaling ship Lagoda. To purchase tickets see link in bio. #col6fund #collagenvi #charity #donate #cure #musculardystrophy #supportscience #research #strengthinweakness (fb)
🧬We were thrilled to hear exciting updates from one of our funded physician investigators, Dr.Foley from the NIH, on biomarker development for future clinical trials! Huge thanks to the organizers for hosting an inspiring scientific conference @curecmd . Grateful to be part of a community pushing progress forward on collagenvi-related muscular dystrophy. #col6fund #collagenvi #cmd #cure #musculardystrophy #scienceinaction #biomarkers #clinicaltrials #collaboration #researchmatters (fb)
Poslední komentáře
Incredible work being done by the COL6 Fund! Together, we can make a difference for those affected by Collagen VI-related dystrophy. 💖 #CureColl6detail |
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Just donated to COL6 Fund! Every little bit helps us get closer to finding a cure for this rare condition. Let’s support Wesley and all the warriors fighting this battle! 🙌 #FundCol6detail |
Poslední diskuze
1. How can we increase awareness and funding for research on rare diseases like Collagen VI-related dystrophy, which often struggle to gain attention compared to more common conditions?Odpovědí: 3, Naposledy před 1 den detail |
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2. What are some innovative fundraising ideas that could help the COL6 Fund engage communities and support research efforts for Collagen VI-related dystrophy?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Westport
O společnosti
- H12 -
FUND COL6 About Mission Research Strategy Wesleyx27s Warriors Col6 Running Donations Targeting Therapies Our Family Reach Out Resources More Welcome to the COL6 Fund COL6 Fund is a registered 501 c 3 nonprofit raising money to cure Collagen VIrelated dystrophy a rare congenital muscular dystrophy. COL6 FUND Collagen VIrelated dysthrophy is a rare and understudied musclewasting disorder. Wesley39s Story What We Do COL6 Fund was founded in 2020 because there are only a handful of researchers thousands of children and still no treatments. The technology and science are here but the funds to direct research are not.
Shromažďování finančních prostředků a/nebo distribuce finančních prostředků.
