Education and Research of Children's Genetic Diseases of the Brain
650849159
Boca Raton, FL 33496
mfrfoundation.org
mfrfoundation
MathewForbesRomerFoundation
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Novinky
September is a month of awareness, hope, and action for important causes that are deeply connected to our mission: • Tay-Sachs and Related Genetic Brain Diseases Awareness Month • Newborn Screening Awareness Month These observances shine a light on rare, devastating genetic diseases that affect children and families around the world. They also remind us of the power of early detection, groundbreaking research, and community support in driving change. At the Mathew Forbes Romer Foundation (MFRF), we’re committed to: • Funding innovative research and clinical trials to find treatments and a cure • Expanding newborn and genetic screening to ensure early diagnosis and intervention • Preparing the next generation of healthcare professionals through scholarships and specialized training Join us this month in raising your voice, sharing knowledge, and supporting families as we move closer to a future free of these devastating diseases. Click below for the "What's New and Upcoming Newsletter" #TaySachs #NewbornScreening #RareDisease #MFRF #HopeForTheFuture (fb)
Very busy but exciting weekend for our team at another major event with the Jewish Federation of Palm Beach County. Over 1,000 people were expected to pass by, learn about and particiate with our genetic testing and education partnership with jscreen With Lisajane Meyers Romer, Monica Melser-Gettleman , Dr. Marcie Rutherford, and Kevin Romer (fb)
Poslední komentáře
So inspired by the work being done by the MFRF! It’s amazing to see such dedication to finding cures for these heartbreaking diseases. Can’t wait for the gala celebration! 🎉❤️detail |
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Count me in for the 5K walk/run! 🏃♂️🏃♀️ Such a great way to support research and awareness for children's genetic diseases of the brain. Together, we can make a difference! 🌟detail |
Poslední diskuze
What are some innovative fundraising strategies that NGOs can adopt to further support the research and education of children's genetic diseases?Odpovědí: 3, Naposledy před 1 den detail |
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How can we improve community awareness and access to genetic counseling services for families at risk of genetic diseases like Tay-Sachs?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Boca Raton
O společnosti
- T30 -
EVENING GALA CELEBRATIONSunday February 2 2025 INAUGURAL MFRF 5K WALKRUN FOR BRAIN HEALTHSunday January 12 2025 WHATS NEW Learn about all the new studies events and outreach programs we do to help support you. GET EDUCATED. We strive to fund better education research of Childrens Genetic Diseases of the Brain MFRF has provided leadership and raised approximately 2. 5 million of funding for projects spanning its mission and vision across three pillars Research of Treatments and Cures Education and Genetic Screening and care through Nursing School Educational programs.
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