Home - ISMRD
522164838
2021
SAN JOSE, CA 95118
ismrd.org
ismrdrarediseases
4845294
Podobné organizace
Podobné organizace global
Více z SAN JOSE
Cimbálová muzika HUSAŘI, z. s. |
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CLUB JOSEFOV, z. s. |
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Jezdecký klub SLOVÁCKO, z.s. |
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Kultura a víno, z. s. |
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Mistrovská škola řemesel a umění Josefův Důl, z.ú. |
Podobně sociální sítě (194)
MOPED TEAM TLUMAČOV z.s.195 |
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Badmintonový klub Králův Dvůr, z.s.196 |
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Česká kultura, z.s.196 |
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Římskokatolická farnost - děkanství Nové Město nad Metují196 |
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Římskokatolická farnost Kunovice196 |
Více Výzkum specificky pojmenovaných nemocí
End Duchenne z.s.Horní Branná |
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Pomáhej SRDCEM, z.s.Chodov |
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Život bez střeva, z.s.Praha |
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České ILCO, z.s.Praha |
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FIT-ILCO Praha, z.s.Praha |
Novinky
📢 ISMRD International Forum Kicks Off TOMORROW! Check-in & Breakfast Info! 📢 The countdown is officially over! The ISMRD International Forum begins TOMORROW, AUGUST 8th, 2025! 🎉 Get ready for an incredible event packed with cutting-edge science, crucial discussions, and unparalleled networking opportunities in the lysosomal disease community. First things first for our in-person attendees: Check-in is open TODAY, August 7th from 4:00 PM - 6:00 PM and TOMORROW, August 8th from 7:00 - 8:00 AM at Pinnacle Foyer in the Graduate by Hilton Hotels in Minneapolis. Tomorrow morning, join us for breakfast at 7:00 AM! The Forum officially begins at 8:00 AM tomorrow. 🚨 LAST CHANCE FOR WEBINAR ACCESS! 🚨 If you can't join us in person, make sure you sign up for webinar access TODAY! This is your final opportunity to join us virtually and not miss a single moment. Register now for the virtual webinar: https://us06web.zoom.us/webinar/register/WN_nFqAds0IQNCXUwp-X1gH5A#/registration We can't wait to see you there! #forum #research #internationalforum #livewebinar #inperson #alphamann #alphamannosidosis #Aspartylglucosaminuria #betamannosidosis #betamann #fucosidosis #galactosialidosis #sialidosis #mucolipidosis #mucolipidosisalphabeta #mucolipidosisgamma #schindlerdisease #glycoproteindisease #lysosomal #rarediseases #patientadvocacy #nonprofit #ultrarare (fb)
📢 1 WEEK TO GO! 📢 The ISMRD International Forum is just ONE WEEK AWAY! 🎉 We're so excited to bring together the lysosomal disease community for an incredible event filled with cutting-edge research, insightful discussions, and invaluable networking. Whether you're joining us in person at Graduate by Hilton Hotels in Minneapolis or virtually via our free webinar access, get ready for a truly impactful experience. Don't miss out! There's still time to register for the webinar: https://us06web.zoom.us/webinar/register/WN_nFqAds0IQNCXUwp-X1gH5A#/registration If we will be seeing you in Minneapolis, don't forget check in is from 4:00 - 6:00 PM on August 7th and from 7:00 - 8:00 AM on August 8th. See you next week! #forum #research #alphamann #alphamannosidosis #Aspartylglucosaminuria #betamannosidosis #betamann #fucosidosis #galactosialidosis #sialidosis #mucolipidosis #mucolipidosisalphabeta #mucolipidosisgamma #schindlerdisease #glycoproteindisease #lysosomal #rarediseases #patientadvocacy #nonprofit #ultrarare (fb)
Poslední komentáře
🌍💙 So grateful for the incredible work ISMRD is doing to support families affected by Glycoprotein Storage Diseases! Can't wait for the upcoming conference. Let's work together to spread awareness and find a cure! #HopeForFamiliesdetail |
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👏✨ Huge shoutout to ISMRD for their ongoing commitment to research and advocacy! Together, we can make a difference for those facing Glycoprotein Storage Diseases. Looking forward to connecting with other families at the conference! #UnitedForACuredetail |
Poslední diskuze
What are the most effective strategies for raising awareness about Glycoprotein Storage Diseases in local communities?Odpovědí: 3, Naposledy před 1 den detail |
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How can we improve our global network of support to better assist families facing the challenges of Glycoprotein Storage Diseases?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
SAN JOSE
O společnosti
- H80 -
Registration and Sponsorship Now Open for ISMRDs 7th International Family and Scientific Conference to be held August 79 2025. For more details click here. The International Society for Mannosidosis Related Diseases Welcome. ISMRD is an internationally focused notforprofit organization whose mission is to advocate for families and patients.
Výzkum specificky pojmenovaných nemocí