CTNNB1 Connect & Cure – Finding treatment options and a cure for CTNNB1 Syndrome while improving the lives of our patients and community.
834541448
2019
Morristown, NJ 07960
curectnnb1.org
ctnnb1cc
curectnnb1
Podobné organizace
The TBCD Foundation |
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Courageous Cousins |
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Tbc1D24 Foundation |
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Cure Pogz Disorders Foundation Inc |
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CTNNB1 SYNDROME AWARENESS WORLDWIDE |
Podobné organizace global
THE CHILDREN'S HYPERINSULINISM CHARITY |
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PTEN RESEARCH FOUNDATION |
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CANCER CARE TRUST |
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CURE MYOTONIC DYSTROPHY UK CHARITY (CDM) |
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The Cure Starts Now Inc |
Podobně sociální sítě (1071)
Farní sbor Českobratrské církve evangelické v Telecím1085 |
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NANOPROGRESS, z.s.1075 |
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Investee Education, z.s.1090 |
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Spoj dva světy, z.s.1100 |
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Spolek přátel a včel, z.s.1100 |
Více Konkrétně pojmenované nemoci
Asociace polioPraha |
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PODEJ NÁM RUKU, z. s.Klatovy |
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Nadační fond Pozitivní životPraha |
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Pacienti IBD z.s.Praha |
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Máša z.s.Praha |
Novinky
🎉💙 Hey Awesome Siblings! 💙🎉 Do you have a brother or sister with CTNNB1 Syndrome? Then Sibshops is just for YOU! 🙌👧👦 It’s a super fun group where you can: 🎲 Play games 🎨 Do cool activities 💬 Talk about what it’s like to have a sibling with special needs 🎉 Make new friends who totally get it Sibshops is all about YOU—your thoughts, your feelings, your fun! 🧡 It’s a place where you can be heard, feel proud, and have a blast! 🐉 You’re part of the CTNNB1 Dragonfly Family—and we think you’re AMAZING. 📅 Next Sibshop: 🗓️ Sunday, June 22nd ⏰ 3 PM ET 📧 Register by emailing: abbyturnwald@gmail.com 💥 Come hang out, be yourself, and connect with other super siblings like you! #CTNNB1Siblings #Sibshops #CTNNB1Strong #DragonflySibling #SuperSibs #CTNNB1Family (fb)
👨👧👦💙 Calling All CTNNB1 Dads! 💙👨👧👦 This one’s for the incredible fathers in the CTNNB1 community—the protectors, advocates, cheerleaders, and snuggle pros. 🛡️❤️ In honor of all the amazing dads out there, we want to see your favorite Dragonfly + Dad moments! 🐉📸 👉 Share a photo of your CTNNB1 warrior with their dad—whether it’s silly, sweet, or superhero-level strong. Use the hashtag #CTNNB1DadLove so we can celebrate together! Let’s fill our feed with love, strength, and those irreplaceable dad-kid smiles. 😄✨ 📤 Post your pic, tag us, and don’t forget to tag a fellow CTNNB1 dad to join in! #CTNNB1 #SpecialNeedsDads #DragonflyStrong #CTNNB1Family #FathersOfCTNNB1 #DadLove 🧡🐉👨👧 (fb)
Poslední komentáře
This is such an important cause! Let's raise awareness together and help find a cure for CTNNB1 Syndrome! ❤️🧬detail |
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I’m inspired by the work CTNNB1 Connect and Cure is doing! Every little bit counts—let’s come together to support families and research! 💛💙detail |
Poslední diskuze
1. What strategies do you think are most effective for raising awareness about rare genetic disorders like CTNNB1 Syndrome in our communities?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can families impacted by CTNNB1 Syndrome best support each other and share resources within the community?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
12
4.5
Morristown
O společnosti
- G80 -
CTNNB1 Connect Cure What is CTNNB1 . CTNNB1 Syndrome is a rare genetic disorder related to the CTNNB1 gene. How We Help By funding CTNNB1 research we are creating a roadmap for a cure. Family Support Get connected with other children and parents in the CTNNB1 community.
Konkrétně pojmenované nemoci