Progressive Familial Intrahepatic Cholestasis
Progressive Familial Intrahepatic Cholestasis - PFIC Network
PFIC advocacy and resource network Inc. Improving the lives of patients and families worldwide affected by progressive familiar intrahepatic cholestasis. Advocate, support and keep up with all that is current with PFIC
831084501
IČO
2018
Založeno
Stanton, KY 40380
Adresa
pfic.org
Web
pficnetwork
Twitter (82)
pficawareness
Facebook (942)
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Podobně sociální sítě (1024)
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Více Alianční/advokační organizace
Novinky
05 říj
https://t.co/cSvCgOaxhs (tw)
05 říj
Just posted a photo https://t.co/dUScEc4H4a (tw)
Poslední komentáře
Thank you for bringing awareness to PFIC! Together, we can make a real difference in the lives of families affected by this rare disease. 💚✨detail |
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I'm so inspired by the work you’re doing with the IMPACT project! Can’t wait to see how the Treatment Experience App will help improve patient care and outcomes. Keep up the amazing work! 🌟🌍detail |
Poslední diskuze
1. How can we better leverage the PFIC IMPACT Treatment Experience App to effectively gather patient experiences and improve treatment options for Progressive Familial Intrahepatic Cholestasis?Odpovědí: 3, Naposledy před 1 den detail |
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2. What strategies can we implement to raise awareness and educate healthcare professionals about PFIC, ensuring that they are equipped to support affected families?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4
Employee
30
Volunteer
4.5
Reviews
Stanton
Místo
O společnosti
- G01 -
Progressive Familial Intrahepatic Cholestasis PFIC Make an IMPACT. IMPACT is our project designed to prepare our community for patientcentered outcomes research. A major part of the project is the PFIC IMPACT Treatment Experience App. This innovative communitybuilt tool shares information about PFIC treatments and collects information about patient experiences.
Alianční/advokační organizace
23 Vacancy
More Detail
