International Rett Syndrome Foundation
Research. Family Support. Advocacy. | International Rett Syndrome Foundation
311682518
1999
Cincinnati, OH 45242
rettsyndrome.org
Rettsyndrome
RettSyndrome
483220
Podobné organizace
Ella Foard Foundation for Rett Syndrome |
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Rett Syndrome Research Trust, Inc. |
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Kate Foundation for Rett Syndrome Research Inc |
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International Rett Syndrome Association, Inc. |
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International FOXP1 Foundation |
Podobné organizace global
REVERSE RETT |
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RETT UK |
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THE CHILDREN'S HYPERINSULINISM CHARITY |
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PTEN RESEARCH FOUNDATION |
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CURE MYOTONIC DYSTROPHY UK CHARITY (CDM) |
Podobná návštěvnost
Český rybářský svaz, z. s. |
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Svaz lyžařů České republiky z.s. |
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Horská služba České republiky, z.s. |
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Český svaz orientačních sportů |
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Česká asociace stolního tenisu |
Podobně sociální sítě (32243)
Lanzpodenco, z.s.33000 |
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Nevypusť Duši, z. s.34000 |
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Běhejme a pomáhejme útulkům, z.s.37000 |
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Eta Carina Nebula z. s.36000 |
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Helppes - Centrum výcviku psů pro postižené, o.p.s.33000 |
Novinky
WE NEED YOUR HELP! Please contact your Members of Congress TODAY and urge them to list Rett syndrome as a topic eligible for federal research funding in the FY26 Defense Appropriations bill as part of the Congressionally Directed Medical Research Program (CDMRP). By sharing your story, you play a critical role in securing federal research funding for Rett to help develop new treatments and cures. For FY24, Rett researchers received $3.2M in funding because of you. And, because of your efforts last summer, applications for the $150M available in the FY25 funding cycle will open in the coming weeks! With our Advocacy Tool, taking action is quick and easy! Visit rettsyndrome.org/advocacy, click "Take Action" and use your address to find your elected officials. Make sure to personalize the letter with your story, and then click send! Make your voice matter today! (fb)
To the moms who rise each day with determination, meet every challenge with love, and make room for joy in the hardest moments—you are the heartbeat of our Rett community. Today, and every day, we honor you. 💜 Happy Mother’s Day. (fb)
Poslední komentáře
Incredible work, IRSF! The advancements in research and the support for families are truly inspiring. Together, we can create a brighter future for those affected by Rett syndrome! 💜detail |
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So grateful for the resources and community you provide! It's uplifting to see so many coming together to fight for a world without Rett syndrome. Every step counts! 🌟detail |
Poslední diskuze
1. What role do you believe families play in influencing Rett syndrome research and treatment initiatives, and how can we better amplify their voices in the process?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can we leverage advancements in gene therapy to increase accessibility and affordability for families affected by Rett syndrome?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
14
200
4.5
Cincinnati
O společnosti
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Learn more about IRSF and how to stay connected. In this years edition we reflect on how far research has come with updates and stories from our community. Explore clear and reliable information to help you better understand Rett syndrome. Learn more about the promising drug treatments and gene therapies in development for Rett syndrome.
