Myotonic Dystrophy Foundation
Myotonic Dystrophy Foundation
205014628
2006
Oakland, CA 94612 USA
myotonic.org
myotonicstrong
MyotonicStrong
1607462
Podobné organizace
FAMILIAL DYSAUTONOMIA NOW FOUNDATION |
|
Cure Lgmd 2T Inc |
|
A Toast To Carly |
|
DYSTONIA MEDICAL RESEARCH FOUNDATION |
|
International Myotonic Dystrophy Organization Inc |
Podobné organizace global
Podobná návštěvnost
ALZHEIMER HOME z.ú. |
|
BK OPAVA z.s. |
|
ŽIVÝ KRAJ - DESTINAČNÍ AGENTURA PRO KARLOVARSKÝ KRAJ, Z.S. |
|
Viola z. ú. |
|
Městské divadlo Jablonec nad Nisou, o.p.s. |
Podobně sociální sítě (8529)
ZOOPARK STĚŽERY, o.p.s.8600 |
|
Otevřeno, z. s.8700 |
|
Búdy Mutěnice z.s.8600 |
|
APERIO - Společnost pro zdravé rodičovství, z.s.8646 |
|
Sdružení pro rozvoj cestovního ruchu na Benecku a okolí, z.s.8700 |
Více Nemoci nervů, svalů a kostí.
Nadace Jakuba VoráčkaKamenné Žehrovice |
|
Pomáhej SRDCEM, z.s.Chodov |
|
Achilleus z. s.Libušín |
|
Klub stomiků ILCO Kladno, z.s.Kladno |
|
Pobočka Diakonie Církve bratrské v MostěMost |
Novinky
🍻 Raise a glass for #myotonicDystrophy this Sunday! Support the Ditkowsky's & Zach's as they guest bartend at the Saint James Brewery — all cash tips go to @MyotonicStrong to support community, care & a cure for DM!💚 Can't attend in person? Donate now at https://t.co/691xG8NxU0 https://t.co/YhXZVR0K4l (tw)
💚#MyotonicDystrophy In Motion athletic gear is back, available through July! 🚲 Movement Matters — support the DM community, raise awareness, & get moving with this limited release of athletic gear! 👉 Grab yours: https://t.co/MLPrOBkBqO https://t.co/Xx6FEYsvE3 (tw)
Poslední komentáře
So excited to see the new educational animations from MDF! Knowledge is power, and this series will surely help many understand Myotonic Dystrophy better. 💙 #MyotonicDystrophy #EducationMattersdetail |
|
Incredible work being done by the Myotonic Dystrophy Foundation! Together, we can make strides towards better care and ultimately a cure. Keep pushing the boundaries of research! 🙌 #CommunityCareCuredetail |
Poslední diskuze
1. How can we enhance community support and resources for families affected by myotonic dystrophy, particularly in terms of education and awareness about genetic testing and inheritance patterns?Odpovědí: 3, Naposledy před 1 den detail |
|
2. What strategies can the Myotonic Dystrophy Foundation implement to advocate for policy changes that address the high healthcare costs faced by patients with DM and improve access to necessary treatments?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
10
90
4.5
Oakland
O společnosti
- G50, H50, T30 -
Toolkit The Latest MDF is excited to introduce Understanding Myotonic Dystrophy a new series of short educational animations designed to educate people living with myotonic dystrophy DM and their healthcare providers. Our second animation Understanding Myotonic Dystrophy Inheritance of Myotonic Dystrophy Type 1 DM1 explains how DM1 is passed down from generation to generation and highlights the importance of genetic testing. Hot off the presses a large study examining healthcare costs and utilization for patients with myotonic dystrophy highlighted high clinical and economic burden as well as stresses the importance of improving care and lowering the healthcare costs. Specifically the study showed that DM patients Drawn to RNA biology Dr.
Nemoci nervů, svalů a kostí. Výzkum nervů, svalů a kostí Veřejné nadace
