The Herpes Viruses Association

Overview

The Herpes Viruses Association, registered charity number 291657, is a UK-based nonprofit organization dedicated to supporting individuals affected by herpes simplex virus, particularly those dealing with genital herpes. Formed in the early 1980s, the association was officially registered as a charity in 1985. It was established by individuals with herpes simplex in response to widespread misinformation and stigma surrounding the condition[2][3][5].

Activities and Services

The Herpes Viruses Association offers a range of services and resources to its members and the public:

• Information and Support: The association provides detailed information on herpes simplex, including guidance on managing symptoms, understanding the virus, and dealing with the psychological aspects of the condition. This includes publication of a quarterly journal, SPHERE, which covers research updates and articles on managing stress and living with herpes[2][5].

• Helpline: A helpline operated by trained volunteers is available for medical inquiries and emotional support. This service helps individuals cope with the psychological impact of herpes simplex[4].

• Community Events: The association organizes regular support group meetings, both online via Zoom and in London, allowing individuals to share experiences and find support from others with similar conditions[2].

• Research and Trials: The Herpes Viruses Association conducts trials to evaluate complementary treatments for herpes simplex. For example, in 2014, it conducted a trial on liquorice lip balm to alleviate symptoms[3].

• Advocacy: The association campaigns to reduce stigma around herpes simplex and has been involved in advocating for the rights of individuals affected by the virus. Notably, it supported a campaign against treating herpes transmission as a criminal offense[3].

History and Development

Founded in 1982, the Herpes Viruses Association initially began as local group meetings before expanding into a national organization. It received a grant from the Department of Health, which facilitated its growth and establishment as a registered charity in 1985[3][5]. Over the years, the association has grown to include a small team of staff and volunteers who assist in operating the helpline, hosting meetings, and contributing to awareness campaigns[5].

Leadership and Recognition

Dr. Phil Hammond, a well-known comedian and advocate, serves as the president of the association. Previously, Clare Rayner was a patron during the period from 1993 to 2002[3]. The association's director, Marian Nicholson, is often quoted on research and developments related to herpes simplex treatments[3].

Financial Overview

As of the financial year ending March 31, 2024, the association reported a total income of £155,635 and a total expenditure of £174,789. This financial data indicates that the organization continues to operate and provide essential services despite the slight deficit[4].

In summary, The Herpes Viruses Association plays a vital role in the UK by providing support, resources, and advocacy for individuals living with herpes simplex, working to demystify the condition and reduce societal stigma.

[1] https://herpes.org.uk [2] https://herpes.org.uk/about-us/ [3] https://en.wikipedia.org/wiki/Herpes_Viruses_Association [4] https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/291657 [5] https://painuk.org/members/charities/herpes-viruses-association/