Patients must be at the heart of research and care. Despite medical progress, too many people with rheumatic diseases like systemic sclerosis (SSc) still face late diagnoses, limited treatment options, and invisible burdens — from lost employment to social isolation. Our CEO, Sue Farrington, has contributed to an article on the role of the patient in rheumatology, highlighting SRUK’s co-produced research strategy and how meaningful patient–industry partnerships are reshaping research — from clinical trial design to something as practical as tablet size. Read more (paywall): https://www.nature.com/articles/s41584-025-01303-z (fb)

Do you avoid using the #heating because of concerns about the cost? Have you experienced #Raynaud’s attacks as a result of not turning the heating on? We want to better understand the challenges people with Raynaud’s face during the colder months, especially with the added pressure of increasing bills, which they incur as a result of requiring the use of heating to help manage their symptoms. Please take a minute to complete our anonymous #Winter Energy survey and help SRUK strengthen our voice and advocate for our community this season. https://www.surveymonkey.com/r/7PF2Y3Z (fb)