National Eczema Society

The National Eczema Society is a UK-based charity dedicated to improving the quality of life for individuals affected by eczema and related skin conditions. Established in 1975, the organization is a registered charity in England and Wales, operating under the charity number 1009671.

Purpose and Activities

The primary objective of the National Eczema Society is to support people with eczema and advocate for their rights and needs. The charity works to provide high-quality information and resources to individuals affected by eczema, empirical evidence-based advice, and a collective voice to raise awareness about the condition. They also play a crucial role in campaigning for better medical care and supporting research into new treatments.

Key activities include:

• Information and Advice: Producing a wide range of educational materials, including fact sheets, booklets, and a quarterly magazine called Exchange.
• Support: Running helplines and connecting people with local support groups.
• Advocacy: Engaging in campaigns to enhance medical care for eczema patients and raising awareness about the condition.
• Research: Supporting medical research aimed at understanding the causes of eczema and developing effective treatments.

Impact and Initiatives

The National Eczema Society has had a positive impact on the lives of individuals with eczema through various initiatives. These include:

• Community Engagement: Sharing the experiences of eczema patients with healthcare professionals to improve care.
• Public Awareness: Conducting research and publicizing findings to raise awareness, such as the relationship between menopause and eczema.
• Healthcare Support: Working to ensure timely access to dermatology services, addressing long waiting times for appointments.

Operations and Governance

The society operates with a board of trustees who oversee its strategic direction and ensure effective management. The organization relies on donations and memberships to continue its work, offering annual membership for UK residents. The financial management of the charity is transparent, with detailed reporting available through the Charity Commission.

[1] https://eczema.org [2] https://eczema.org/information-and-advice/ [3] https://rarediseases.org/organizations/national-eczema-society-uk/ [4] https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1009671 [5] https://nationaleczema.org