Sickle Cell and Thalassaemia Support Project (Wolverhampton)

The Sickle Cell and Thalassaemia Support Project (SCTSP) is a UK nonprofit organisation dedicated to addressing health disparities and providing support for families affected by sickle cell disease or thalassaemia. Established in 1990, the organisation operates primarily in Wolverhampton, Walsall, and Dudley.

Charity Overview

• Charity Number: 1077687
• Registration History: The project was officially registered as a charity on 5 October 1999[4].
• Operational Areas: The SCTSP serves communities across Wolverhampton, Walsall, Dudley, and surrounding areas, focusing on improving health outcomes and quality of life for those affected by these blood disorders[1][5].

Mission and Activities

The SCTSP's mission is to provide comprehensive support to individuals and families living with sickle cell or thalassaemia. This includes offering resources, services, and advocacy to address the unique challenges faced by these families. The organisation engages in community outreach, education, and advocacy efforts to enhance awareness and understanding of these conditions[1][5].

Community Engagement

• Patient Experience Surveys: The SCTSP conducts surveys to gather insights from patients living with sickle cell disease, aiming to improve services and support based on their experiences[5].
• Partnerships and Events: The organisation participates in various community events and partnerships, such as supporting employee resource groups in fundraising challenges like the Tough Mudder[5].

Governance and Operations

The SCTSP operates as a registered charity with a structured governance framework. It files annual accounts and returns, which are accessible through charity registries[2][3].

[1] https://www.sctsp.org.uk/about-1 [2] https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/3959621/charity-overview [3] https://find-and-update.company-information.service.gov.uk/company/03575079/filing-history [4] https://register-of-charities.charitycommission.gov.uk/en/sector-data/top-10-charities/-/charity-details/3959621/full-print [5] https://www.sctsp.org.uk