INTERNATIONAL COSTELLO SYNDROME SUPPORT GROUP

CostelloKids – A UK Registered charity –

I founded and run the UK charity (CostelloKids) International costello syndrome support group charity number 1085605 Costello Syndrome is a rare syndrome affecting between 1000-1500 people world wide. On average 2 babi To further the understanding of Costello Syndrome, provide effective Community Support. Providing direct support for families effected by Costello Syndrome, as well as education to both education providers and medical professionals.To try to give relief of those suffering from Costello Syndrome, by establishing a support network for such persons, their families and their Carers.
1085605
IČO
2001
Založeno
M40 3RQ
Adresa
costellokids.com
Web
CostelloKids
Twitter (43)
costellokidsUK
Facebook (2059)
1968334
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Poslední komentáře

So grateful for the incredible work CostelloKids is doing! Together we can raise awareness and support families navigating the challenges of Costello Syndrome. 💖
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Every child deserves understanding and support! Let’s come together to spread the word about Costello Syndrome and help make a difference in the lives of those affected. 🌍💪
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Poslední diskuze

- What strategies have been most effective in raising awareness about Costello Syndrome within the medical community and among parents of affected children?
Odpovědí: 3, Naposledy před 1 den detail
- How can we enhance the global support network for families dealing with Costello Syndrome, and what resources do parents find most valuable?
Odpovědí: 3, Naposledy před 1 den detail

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- G20, H12, P20 -

Support us in our understanding of Costello syndrome 1000 1500 people are affected worldwide Support our campaign to help support more parents Costello Syndrome A rare syndrome characterized by multiple congenital anomalies including dysmorphic craniofacial features cardiac defects ectodermal and musculoskeletal anomalies failure to thrive and developmental delay and cancer. A Parent to Parent Support Group We provide information about Costello syndrome and support to parents and health providers around the world. Most importantly we provide a global support network. Our Aim To gain a better understanding of Costello syndrome and to identify the best practices in treatment for our children.

Vrozené vady, genetická onemocnění Shromažďování finančních prostředků a/nebo distribuce finančních prostředků. Organizace poskytující sociální služby
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