CostelloKids – A UK Registered charity –
1085605
2001
M40 3RQ
costellokids.com
CostelloKids
costellokidsUK
1968334
Podobné organizace
MYOTONIC DYSTROPHY SUPPORT GROUP |
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ICHTHYOSIS SUPPORT GROUP |
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PIP PARENTS INFORMATION PORTAL |
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CURE MYOTONIC DYSTROPHY UK CHARITY (CDM) |
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USHER KIDS UK |
Podobné organizace global
Cardio Facio Cutaneous International |
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COSTELLO SYNDROME FAMILY NETWORK |
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International Rett Syndrome Association, Inc. |
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International Rett Syndrome Foundation |
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Canadian CdLS Awareness Foundation |
Podobná návštěvnost
Podobně sociální sítě (2102)
CZ/SK bronies z.s.2135 |
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Společnost pro queer paměť, z. s.2159 |
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Unie obhájců České republiky, z. s.2148 |
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mSTAN, z. s.2126 |
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ENGLISHstay z.ú.2114 |
Více Vrozené vady, genetická onemocnění
DiaKar, z. ú.Karlovy Vary |
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Český institut biosyntetické psychoterapie, z.ú.Praha |
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Parkinson-Help z.s.Praha |
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Občanské sdružení Imunodeficitních pacientů HAE / AAE z.s.Brno |
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Hemojunior, z.s.Praha |
Novinky
A grand day out at Frances house summer festival. #costellosyndrome #costellokids (fb)
A lookback to the 2023 Costello syndrome family conference USA #costellosyndrome #costellokids (fb)
Poslední komentáře
So grateful for the incredible work CostelloKids is doing! Together we can raise awareness and support families navigating the challenges of Costello Syndrome. 💖detail |
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Every child deserves understanding and support! Let’s come together to spread the word about Costello Syndrome and help make a difference in the lives of those affected. 🌍💪detail |
Poslední diskuze
- What strategies have been most effective in raising awareness about Costello Syndrome within the medical community and among parents of affected children?Odpovědí: 3, Naposledy před 1 den detail |
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- How can we enhance the global support network for families dealing with Costello Syndrome, and what resources do parents find most valuable?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
M40 3RQ
O společnosti
- G20, H12, P20 -
Support us in our understanding of Costello syndrome 1000 1500 people are affected worldwide Support our campaign to help support more parents Costello Syndrome A rare syndrome characterized by multiple congenital anomalies including dysmorphic craniofacial features cardiac defects ectodermal and musculoskeletal anomalies failure to thrive and developmental delay and cancer. A Parent to Parent Support Group We provide information about Costello syndrome and support to parents and health providers around the world. Most importantly we provide a global support network. Our Aim To gain a better understanding of Costello syndrome and to identify the best practices in treatment for our children.
Vrozené vady, genetická onemocnění Shromažďování finančních prostředků a/nebo distribuce finančních prostředků. Organizace poskytující sociální služby