DEBRA UK - The butterfly skin charity
1084958
2001
RG12 8FZ
debra.org.uk
DEBRACharity
902678
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Novinky
We're hosting a Members Connect event at Parallel Windsor on Sunday 6 July! 📆 It’s a festival of inclusivity with challenge events for all ages, health conditions and abilities, held in the grounds of the majestic Windsor Great Park and staged on the iconic Long Walk 🏰 Join us to connect with the DEBRA team and other members while we soak up the festival atmosphere. And if you fancy it, you can sign up to some of the different challenges 🏃 Find out lots more on our website and register your interest in going: (fb)
🌟 Feel good Friday fundraiser! 🌟 "As father of a young daughter, I've been so moved and inspired by Football legend Graeme Souness following his 2023 swim across the Channel and his upcoming challenge. This year is my 50th birthday and I've decided to challenge my aging body to five difficult sporting events throughout the year. This includes the London T100 Triathlon which I have never done before and consists of a 0.75km swim, a 20km cycle and a 5km run all in one event. The four other events include three 10km and the Great North Run Half Marathon in September. I love a challenge! Having been made aware and educated about EB through Isla's story, I'm determined to complete my 50 challenge. In doing so, I hope to raise awareness of the condition and help support DEBRA to fund the treatments those with EB so desperately need. No matter how big or small a challenge, I find a huge sense of gratification in raising awareness and funds, and at the same time challenging yourself to do something that you never thought possible." Thank you so much Scott for taking on your 50th birthday challenge in support of DEBRA and the EB community 💙 (fb)
Poslední komentáře
💙 So proud to support DEBRA and the incredible work they do for the EB community! Every little bit helps raise awareness and provide vital support. Let’s keep spreading hope! #TeamDEBRA #EBawarenessdetail |
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🌟 Just made a donation to DEBRA! It feels amazing to contribute to such a meaningful cause. If you can, please consider donating or volunteering - together we can make a difference for those living with EB! 💪💖 #SupportEB #DonateTodaydetail |
Poslední diskuze
What innovative fundraising ideas can we explore to increase community engagement and support for individuals living with Epidermolysis Bullosa (EB)?Odpovědí: 3, Naposledy před 1 den detail |
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How can we improve awareness and understanding of Epidermolysis Bullosa among the general public and healthcare professionals to ensure better support for those affected?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
RG12 8FZ
O společnosti
- G30, E26, H12 -
Living with EB Emergency information for EB patients Get involved Challenge 2025 About us Contact us EB research and insights Our research strategy Ways to donate Donate your preloved items Shop Shop Finder Challenge 2025 Graeme and the team are back in 2025 for their greatest challenge yet. Will you join them and be a part of Team DEBRA. We are DEBRA DEBRA is a UK national medical research charity and patient support organisation for people living with the rare extremely painful genetic skin blistering condition epidermolysis bullosa EB also known as butterfly skin. Support for the EB Community Want to join the community.
Rakovina Shromažďování finančních prostředků a/nebo distribuce finančních prostředků.