Home
1095657
2003
EC2A 4NE
gaucher.org.uk
TheGauchersAssociation
3686883
Podobné organizace
GLOUCESTERSHIRE KIDNEY PATIENTS ASSOCIATION |
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GENETIC ALLIANCE UK LTD |
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ASSOCIATION FOR GLYCOGEN STORAGE DISEASE (UK) LIMITED |
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GENE PEOPLE |
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INTERNATIONAL GAUCHER ALLIANCE |
Podobné organizace global
GALACTOSEMIA FOUNDATION |
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ASSOCIATION FOR GLYCOGEN STORAGE DISEASE |
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Gardaccess Inc |
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GAUCHER COMMUNITY ALLIANCE |
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THE FABRYS CHARITY ASSOCIATION |
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Bezobaláč, z. ú. |
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Spolek BeMama |
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Nadace Karel Komárek Family Foundation |
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Nadační fond Gymnázia Písek |
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Collegium Bohemicum, o.p.s. |
Podobně sociální sítě (1058)
Farní sbor Českobratrské církve evangelické v Telecím1085 |
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NANOPROGRESS, z.s.1075 |
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Investee Education, z.s.1090 |
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Spoj dva světy, z.s.1100 |
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Spolek přátel a včel, z.s.1100 |
Více Podpora jedné organizace
Autis Centrum, o.p.s.České Budějovice |
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Svět autismu, z.s. |
Novinky
The Gauchers Association held its 11th Neuronopathic Family Weekend from Friday to Sunday. It was so wonderful to get together with so many of our GD3 families and spend a good time with each other. The weekend included an interactive family education session all about Gaucher as well as a panel on New Therapies and talks on Transition and Independent Living to name a few. Not forgetting slime and a magical magician keeping the children entertained. For any information about the weekend, please email su@gaucher.org.uk #gaucher #raredisease #goodtimes #type3 (fb)
Poslední komentáře
💚 Thank you, Gauchers Association, for being a beacon of hope for so many families affected by Gaucher disease. Your dedication to awareness and research makes such a difference! 🌟detail |
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💙 Together, we can support the incredible work being done for those battling Gaucher disease. Let’s spread the word and help raise funds for this vital research! 🙌detail |
Poslední diskuze
What are some innovative ways that NGOs like the Gauchers Association can raise awareness about Gaucher disease within local communities?Odpovědí: 3, Naposledy před 1 den detail |
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How can collaboration between the Gauchers Association and healthcare institutions enhance the quality of care for patients diagnosed with Gaucher disease?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
EC2A 4NE
O společnosti
- G11, H12, E99 -
Promoting awareness pioneering research and providing support and information for those affected by Gaucher disease. Need support today. NEED SUPPORT TODAY. TELEPHONE 01453 549231EMAIL gagaucher.
Podpora jedné organizace Shromažďování finančních prostředků a/nebo distribuce finančních prostředků. Zdraví - Obecné a Rehabilitační N.E.C.