Alex, The Leukodystrophy Charity
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1106008
2004
alextlc.org
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Podobné organizace
ASSOCIATION OF MEDICAL RESEARCH CHARITIES |
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ANGELMAN UK |
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ALEX HULME FOUNDATION |
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ALEX'S WISH |
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ARCHANGEL MLD TRUST |
Podobné organizace global
ALD Connect, Inc. |
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Alex Rezkalla Foundation |
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Alexs Way |
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BELIEVING FOR BRYLEIGH FOUNDATION INC |
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THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY |
Více z
50. rovnoběžka z.s. |
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7 DNÍ, z. s. |
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7SEAL JUDICIAL z.s. "v likvidaci" |
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7x7 z.s. |
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777 Racing Team z.s. |
Podobně sociální sítě (3590)
Česká Mountainbiková Asociace, z.s.3600 |
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AUTOMOTO KLUB PAČEJOV V AČR3600 |
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Sportovní klub bojových umění Hostivař, z.s.3600 |
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TJ ZŠ SPV Chomutov, spolek3600 |
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SONS, Středisko výcviku vodicích psů3600 |
Více Nemoci, poruchy a lékařské disciplíny jinde neuvedené.
Novinky
Please join us in wishing Sam good luck as he takes on Causeway Coast Marathon tomorrow for Alex TLC and little Sam, who lives with adrenoleukodystrophy (ALD) 💙 🏃♂️ You can read more about Sam's incredible challenge on his JustGiving page: https://www.justgiving.com/page/forlittlesam Thank you, Sam! #AlexTLC #HelpToCope #HelpToHope #Leukodystrophy #CausewayCoastMarathon #RunningForCharity (fb)
Our Community Weekend 2025 starts today 💙 We look forward to seeing you those in person later today and those attending virtually tomorrow for day 1 of the event! In the run up to the event, we have been sharing details about the presentations you can expect to see at our Community Weekend, with this is our final one. These presentations will all also be live streamed for those attending virtually 💻 Don't forget to sign up if you haven't already: https://docs.google.com/forms/d/e/1FAIpQLSeAtvCl9d3-KL1NC4-RC0Z717BgWGejMTP6xzFR26a-ddFrvg/viewform To find out more about the event: https://alextlc.org/how-we-support-you/peer-support/community-weekends/community-weekend-2025/ #alextlc #helptocope #helptohope #communityweekend2025 (fb)
Poslední komentáře
Just donated to Alex TLC! 💙 It's empowering to see how they support families affected by leukodystrophy. Every little bit helps in bringing hope and resources to those in need! #SupportAlexTLCdetail |
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So grateful for the work Alex TLC is doing! 🙌 Creating a community for those affected by leukodystrophies is so important. Let’s spread the word and help raise awareness together! #TogetherWeCandetail |
Poslední diskuze
1. What are some innovative approaches being explored in the research of leukodystrophies, and how can these advancements improve the quality of life for affected individuals?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can we effectively raise awareness about the various types of leukodystrophies in order to support families and individuals who may feel isolated by these rare conditions?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
O společnosti
- G99, E70, H30 -
What is leukodystrophy. AZ of leukodystrophy Symptoms and their management For professionals Condition management How we support you Our community Campaigns and projects Our research summaries Research Donate Fundraise Support us Our history Our people Governance and operations Helping to cope helping to hope For everyone affected by leukodystrophy We are Alex The Leukodystrophy Charity Alex TLC Established in 2004 Alex TLC provides invaluable support and information to people affected by leukodystrophy. Formerly ALD Life for people affected by adrenoleukodystrophy ALD and adrenomyeloneuropathy AMN we extended our services to support all leukodystrophies in 2019 and became Alex The Leukodystrophy Charity. There are more than 100 different known types of leukodystrophy including some so rare they only affect one or two individuals.
Nemoci, poruchy a lékařské disciplíny jinde neuvedené. Programy veřejného zdraví Výzkum rakoviny
