RARE CHROMOSOME DISORDER SUPPORT GROUP
Unique | Understanding Rare Chromosome and Gene Disorders
1110661
2005
RH8 9EE
rarechromo.org
unique_charity
Uniquerarechromosomedisordersupportgroup
1096690
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Novinky
We have a new guide translation: Our ReNU syndrome (RNU4-2) guide is now available in German Take a look: https://t.co/gk9dtwaqog A big thank you to Nuria, who has helped us to translate this guide for our German speaking community. https://t.co/soLm91MrzR (tw)
Joice is a mother of Ayla and Yan, from the South of Brazil. Her personal manifesto, 'The Moonlight and the Mosaic', reflects her journey with daughter Ayla and her commitment to raising awareness for rare lives, listening, and inclusion. Do you resonate with her words? https://t.co/B5uxHBFkMW (tw)
Poslední komentáře
❤️ So grateful for this amazing support group! It's so important for families like mine to connect and share experiences. Thank you for all that you do! #RareChromosomeDisorderSupportdetail |
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🌟 Just joined and already feeling the warmth of this community! It's comforting to know we're not alone in this journey. Looking forward to connecting with everyone! 💕 #TogetherWeAreStrongerdetail |
Poslední diskuze
1. How can we better utilize digital platforms to enhance support and networking for families affected by rare chromosome and gene disorders?Odpovědí: 3, Naposledy před 1 den detail |
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2. What are some effective strategies for raising awareness about rare chromosome disorders in the broader community?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
RH8 9EE
O společnosti
- G20, P31, E90 -
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Vrozené vady, genetická onemocnění Adopce Ošetřovatelské služby obecné (zahrnuje Candy Stripers)
