- G99, E99, G30, D12 -

Who we are Genetic Alliance UK is an alliance of over 200 charities and support groups working together to improve the lives of people in the UK with genetic rare and undiagnosed conditions. What we do Our longstanding projects We run Rare Disease UK which provides a united voice for the rare disease community and raises awareness each year by leading on Rare Disease Day. We also run SWAN UK which supports children young people and families affected by undiagnosed genetic conditions and raises awareness each year by leading on Undiagnosed Children039s Day. rare conditions are caused by a change to someones genetic code SWAN UK SWAN UK is the only dedicated support network in the UK for families affected by a syndrome without a name a genetic condition so rare it often remains undiagnosed.