AMY AND FRIENDS
Amy and Friends
1119746
2007
CH43 5SR
amyandfriends.org
amyandfriends
amyandfriendsCockayneSyndromeandTTD
Podobné organizace
DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP UK |
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GENETIC ALLIANCE UK LTD |
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GENE PEOPLE |
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RING20 RESEARCH AND SUPPORT UK CIO |
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BARDET-BIEDL SYNDROME UK (BBS UK) |
Podobné organizace global
Team Telomere |
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Cohen Syndrome Association |
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Riaan Research Initiative Inc |
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Rare New England Inc |
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Tbc1D24 Foundation |
Podobně sociální sítě (7548)
Asociace hotelů a restaurací České republiky z.s.7600 |
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Moje dílna, z.s.7600 |
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SK Slavia Praha - klub futsalu FIFA z.s.7618 |
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Česká šipková organizace, z.s.7582 |
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FC Táborsko akademie z.s.7800 |
Více Nemoci, poruchy a lékařské disciplíny jinde neuvedené.
Novinky
What a gorgeous evening our Meg had. We were invited to go along to Beechcroft, Barbara, and Elainne had organised an evening of fundraising. The Cuckooz played some beautiful music. Everyone wat so touched by our story from the beginning of Amy and her families. They donated a massive £400 between them. We are so grateful to you all. Thank You! ❤️💙💛 (fb)
Fergus is 23 today! 🔥🎉 Wishing you a day as amazing as you are — full of good vibes, great people, and maybe just a little bit of mischief. 😉❤💙💛 (fb)
Poslední komentáře
So grateful for the amazing work you're doing at Amy and Friends! Your support truly makes a world of difference for families dealing with Cockayne Syndrome and DNA repair disorders. 💖detail |
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What an incredible initiative! Thank you for providing a supportive community and vital resources for those affected by DNA disorders. Together, we can make a positive impact! 🌟detail |
Poslední diskuze
1. What are some innovative strategies that NGOs like Amy and Friends can implement to foster stronger connections between families affected by DNA repair disorders and the wider community?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can partnerships with medical professionals and researchers be strengthened to enhance support and resources for children diagnosed with Cockayne Syndrome and other linked DNA repair disorders?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
CH43 5SR
O společnosti
- G99, G30, H30, H31 -
Conference Registration Welcome to Amy and Friends supporting childrenyoung peoplefamiliescarers suffering from DNA repair disorders in childhood including Cockayne Syndrome CS Trichothiodystrophy TTD. Our mission statement We are committed to improving the lives of individuals affected by DNA repair disorders in childhood with compassion and through a family centred approach. With our network of dedicated staff volunteers and expert medical professionals we provide practical and emotional support information and education whilst promoting and engaging with groundbreaking research in the UK and internationally. Who are Amy and Friends.
Nemoci, poruchy a lékařské disciplíny jinde neuvedené. Rakovina Výzkum rakoviny
