MYOTONIC DYSTROPHY SUPPORT GROUP
Home - Myotonic Dystrophy Support Group
1134499
2010
NG4 3HQ
myotonicdystrophysupportgroup.org
Myotonicdystrophysupportgroup
Podobné organizace
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Podobně sociální sítě (1541)
Více Vrozené vady, genetická onemocnění
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Český institut biosyntetické psychoterapie, z.ú.Praha |
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Hemojunior, z.s.Praha |
Novinky
Hi everyone, On the 18th of June, there will be a fundraising event in memory of David Stopford, organized by Amy Lewer. The event highlights are: • Group walk AM and PM (dogs welcome) • Main gym event (bike,row,ski) • Cake sale Check out the page ⬇️ and pop around if you can ✨ (fb)
Hi everyone, Please have a look below ⬇️ The Short kids along with their grandad will be taking part in the Great North Swim in lake Windermere on the 14th of June 2025. Support them if you can! 💚 https://www.justgiving.com/page/short-kids (fb)
Poslední komentáře
🌟 Thank you for the amazing work you're doing at the Myotonic Dystrophy Support Group! Your commitment to providing support and information to families affected by this condition is truly inspiring. Let's raise awareness together! 💪💙detail |
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💞 Just joined the Myotonic Dystrophy Support Group and already feel a sense of community! Grateful for the resources and the caring network. If you or someone you know is affected by Myotonic Dystrophy, don't hesitate to reach out! 🌈 #SupportAndCaredetail |
Poslední diskuze
- What are some effective strategies for raising awareness about Myotonic Dystrophy in local communities to support those affected and their families?Odpovědí: 3, Naposledy před 1 den detail |
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- How can technology be utilized to improve support networks for individuals diagnosed with Myotonic Dystrophy and their caregivers?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
NG4 3HQ
O společnosti
- G20, E30, P20, B99 -
Myotonic Dystrophy Support Group is a registered charity founded by Margaret Bowler in 1987 run by volunteers and dedicated to offering the hand of friendship and support to all those affected by Myotonic Dystrophy. We have a central helpline and a network of regional contacts throughout the United Kingdom as well as extensive links abroad. We are supported by professional specialist advisers including in the fields of genetics neurology anaesthetics research and rehabilitation. New Diagnosis.
Vrozené vady, genetická onemocnění Zdravotnická léčebná zařízení (převážně ambulantní) Organizace poskytující sociální služby Vzdělávání n.e.c. (jiné vzdělávání)
