🌟 New App for Adults with Visible Differences Including Ichthyosis 🌟 We’re excited to share a brilliant new resource from our colleagues at the VTCT Foundation (Centre for Appearance Research (CAR) — the ACT It Out app! 📱 Designed with and for people who have a visible difference such as a skin condition, ACT It Out helps adults (16+) connect with what matters most to them and take steps toward living well - even when appearance concerns or social challenges get in the way. 💬 Based on Acceptance and Commitment Therapy (ACT), the app includes six short, self-guided sessions with practical exercises and skill-building tools. ✨ Free to use 📲 Available now on the App Store and Google Play 🧠 Created by researchers, clinicians, and people with lived experience Tagline: “Looking different, living well.” Learn more and download via the Visible Difference Support Hub 👇 🔗 https://visibledifferencesupporthub.com/act-it-out/ #Ichthyosis #VisibleDifference #ACTItOut #VTCTFoundation #MentalHealthSupport #BodyConfidence #AcceptanceAndCommitmentTherapy (fb)

🎬 Behind the scenes at our Family Conference at IWM Duxford! 💙 First and foremost, the conference was all about sharing experiences, hearing updates from medical professionals, and picking up tips on managing the psychological impact of ichthyosis. But having so many members, trustees, and professionals in one place also made it the perfect chance to capture people on film! 🎥 We loved seeing everyone come together—hearing stories, highlighting the work of the Ichthyosis Support Group, and discussing the need for more research and funding. It was such an inspiring and supportive day for the whole community. 🙌 These photos are just a little sneak peek—keep an eye out for more as we share some of the voices and stories that provide support and help drive change in ichthyosis knowledge and care. 💫 #Ichthyosis #IchthyosisSupport #Community #FamilyConference #BehindTheScenes #RareSkinConditions #CommunityVoices #MedicalResearch #FundingForResearch (fb)