We are heartbroken to share that our dear Amarii Samuda (NPC), sadly passed away last month. Amarii brought so much light, courage, and joy to those around him, and his smile and spirit touched countless lives across our community. Our thoughts and deepest condolences are with his mum, Ebony, and the Samuda/Newland family at this difficult time. Amarii will forever be remembered as a true superhero 🕊️💛 #NiemannPick #RareDiseaseCommunity #TogetherForRare (fb)

New Research from Italy! A new study introduces a label-free 3D imaging technology that offers a breakthrough in investigating Niemann-Pick type C (NPC). The research was carried out by the National Research Council (CNR) and Fondazione Telethon, a non-profit organisation dedicated to rare disease research since 1990. 🔗 Read more here: https://www.tigem.it/newsroom/news-events/new-label-free-3d-imaging-technology-in-diagnosing-and-treating-lysosomal-storage-diseases https://www.cnr.it/it/comunicato-stampa/13723/malattie-rare-verso-terapie-mirate-grazie-all-analisi-in-3d-dei-lisosomi #NiemannPick #RareDiseaseResearch #NPC (fb)