MLD SUPPORT ASSOCIATION UK
Home | MLD Support Association UK
1150542
2013
CT5 3SB
mldsupportuk.org.uk
mldsupport
Podobné organizace
MYOTONIC DYSTROPHY SUPPORT GROUP |
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ASSOCIATION FOR GLYCOGEN STORAGE DISEASE (UK) LIMITED |
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LEBER'S HEREDITARY OPTIC NEUROPATHY SOCIETY |
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ARCHANGEL MLD TRUST |
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LYNCH SYNDROME UK |
Podobné organizace global
The Evanosky Foundation |
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United MSD Foundation |
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The Kennedy Ladd Foundation, Inc. |
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THE CALLIOPE JOY FOUNDATION |
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MLD FOUNDATION |
Podobně sociální sítě (82)
Sedmibarevno z.ú.83 |
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Los Brumlos, z.s.83 |
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Kristus pro každého, z.s.83 |
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Divadelní a šermířský spolek Rytíři Gwydyonu83 |
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Centrum integrace dětí a mládeže, z.s.83 |
Více Nemoci, poruchy a lékařské disciplíny jinde neuvedené.
Novinky
Can you help us understand the experiences of those with a Lysosomal Storage Disorder (LSD) in the UK? If you are 16 years or over, please complete a short survey to help clinical centres & patient organisations going forward. To take part, follow: https://t.co/ah51bXU1WK (tw)
Part 4 of “A Rare Find”, The Newborn Screening Collaborative’s comedy short about a young struggling couple as they contend with the thrills, spills, and exhaustion which often accompanies life with a newborn baby. #newborn #newbornscreening #MLD #RareDisease #NHS https://t.co/4woI8PDW9b (tw)
Poslední komentáře
So excited to hear about the MLD Scientific and Family Conference in March 2025! 💙 This is a wonderful opportunity for families to connect and gain valuable insights. Let’s keep raising awareness together! #MLDSupportdetail |
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What an amazing initiative by MLD Support Association UK! Every effort counts in the fight against MLD. Can’t wait to see more families supported and more awareness raised! 🌟 #HopeForMLDdetail |
Poslední diskuze
- What are some effective strategies for raising awareness about Metachromatic Leukodystrophy within local communities?Odpovědí: 3, Naposledy před 1 den detail |
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- How can families affected by MLD best support one another during events like the upcoming MLD Scientific and Family Conference?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
CT5 3SB
O společnosti
- G99, H12, E40, R69 -
Scientific and FamilyConference 2023 Bringing hope to familiesin the fight to eradicate MLD Promoting Treatmentfor LateInfantile andEarlyJuvenile MLD Activity weekends for MLD families Fundraising Volunteeringand Family Fun Days MLD Scientific and Family Conference March 2025 We are excited to announce that registration is now open for the MLD Scientific and Family Conference which will be held at the Holiday Inn Telford from March 21st to 23rd 2025. If you are an MLD family please reach out to us at adminmldsupportuk. org. uk to receive your discount code.
Nemoci, poruchy a lékařské disciplíny jinde neuvedené. Shromažďování finančních prostředků a/nebo distribuce finančních prostředků. Zařízení pro péči o reproduktivní zdraví a související služby
