Trigeminal Neuralgia Association UK

Overview

The Trigeminal Neuralgia Association UK (TNA UK) is a national charity registered under number 1155001. It is dedicated to providing support, encouragement, and information to individuals suffering from Trigeminal Neuralgia (TN), a severe and episodic facial pain condition.

Objectives

The primary objectives of the association include:

• Support and Encouragement: Offering a platform for TN patients and their supporters to share experiences and receive support.
• Information and Research: Collating and disseminating evidence-based information about TN and its treatment options to promote better understanding and management of the condition.
• Awareness and Advocacy: Raising awareness among the general public and healthcare professionals about TN to improve diagnosis and treatment outcomes.

Activities

TNA UK operates several initiatives to achieve its objectives:

• Helplines and Forums: The association maintains both a general helpline and a dedicated members' helpline, staffed by trained volunteers who are themselves TN sufferers. It also hosts an online forum for discussion and support, accessible to members.
• Membership and Events: Membership is available for a nominal annual fee, providing access to exclusive resources and support. The association participates in events to raise awareness and funds for TN, such as the London Marathon.
• Research and Awareness: TNA UK contributes to the body of knowledge and research about TN, aiming to enhance the quality of life for those affected by the condition.

Financial Overview

As of the latest available financial year ending March 2024, TNA UK reported a total income of £189,106 and an expenditure of £148,748. The organization relies on donations and membership fees to fund its activities, with no trading subsidiaries or employee benefits exceeding £60,000. Trustees do not receive remuneration from the charity.

Governance

The charity is governed by a board of trustees who oversee its strategic direction and ensure compliance with charitable regulations. TNA UK also has a team of volunteers contributing to its operations.

[1] https://www.tna.org.uk [2] https://painuk.org/members/charities/trigeminal-neuralgia-association/ [3] https://www.nhs.uk/services/service-directory/trigeminal-neuralgia-association-uk/N11001087 [4] https://pae-eu.eu/members/trigeminal-neuralgia-association-uk/ [5] https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/5041584