Pathfinders Neuromuscular Alliance

Welcome to Pathfinders Neuromuscular Alliance

User-led organisation, campaigning for choice, control & quality of life for adults with #MuscularDystrophy and related conditions. We offer peer support & info Pathfinders Neuromuscular Alliance is a user-led charity run by, and for, people with muscle-weakening (neuromuscular) conditions, which promotes choice, control, and quality of life. Our main activity is to provide advice and information to adults living with Muscular Dystrophy and related neuromuscular conditions via information events, guides and resources, and peer support activity. We also raise awareness of issues facing adults with neuromuscular conditions and provide advice on health research committees and steering groups
1155884
IČO
2014
Založeno
BN27 3AH
Adresa
pathfindersalliance.org.uk
Web
pathfindersnma
Twitter (1972)
pathfindersalliance
Facebook (2415)

Novinky

Poslední komentáře

Absolutely love the work you all are doing! It’s so important for people with musculoskeletal conditions to feel supported and empowered. Keep shining a light on these vital issues! 💪✨
detail
Thank you, Pathfinders, for being the voice for those living with neuromuscular conditions. Your efforts in providing resources and support are truly making a difference in our lives. Together, we can create a brighter future! ❤️🌟
detail

Poslední diskuze

1. What are some effective strategies for raising awareness and advocating for the needs of individuals living with neuromuscular conditions?
Odpovědí: 3, Naposledy před 1 den detail
2. In what ways can peer support within the Pathfinders community enhance the quality of life for adults with muscle-weakening conditions?
Odpovědí: 3, Naposledy před 1 den detail

V okolí

Kontaktovat
Pathfinders Neuromuscular Alliance logo
Pathfinders Neuromuscular Alliance
+ Sledovat
4.5
Reviews
BN27 3AH
Místo
O společnosti

- P84, E99, R24 -

Supporting people with neuromuscular conditions Pathfinders Neuromuscular Alliance Pathfinders Neuromuscular Alliance is a user led charity run entirely for and by people with muscleweakening conditions. We provide social and support services a range of information guides events and outreach and campaign on issues that matter to adults living with muscleweakening conditions. I Need Advice Resources personal experiences and one to one advice and support Get Involved Fundraising volunteering events and becoming a member Read Our Resources From news and research to blogs advice and member features We Are UserLed Pathfinders Neuromuscular Alliance is run by people with muscleweakening conditions for people with muscleweakening conditions. To become part of the Pathfinders Team and contribute to the work we do on behalf of the community see the opportunities available on our Jobs Volunteering page now and work to become the change other people with muscleweakening conditions need in the world.

Služby pro etnické/ imigrantské skupiny Zdraví - Obecné a Rehabilitační N.E.C. Práva žen
23 Vacancy More Detail