Home | SJS | SJSA Awareness
Our mission is to bridge the gap for those affected by SJS/TEN through info & support from the point of diagnosis & through their recovery & adaptation process Stevens-Johnson Syndrome (SJS) is the medical term for an allergic reaction to medication which in turn affects the skin and mucus membranes in the body Activities includea) providing support, information and advice to people with or affected by Stevens-Johnson Syndrome (SJS)and/or Toxic Epidermal Necrolysis (TEN) b) raising awareness of SJS and TENc) Supporting research into the effects, causes, and treatment of SJS and TENd) and the education of the public in the subject of drug allergic reactions specifically SJS and TEN
1159408
IČO
2014
Založeno
RM6 6AX
Adresa
sjsawareness.org.uk
Web
sjsawareuk
Twitter (89)
SjsAwarenessUk
Facebook (807)
Podobné organizace
ANAPHYLAXIS UK |
|
THE BRITISH ALLERGY FOUNDATION |
|
BRITISH SJOGRENS SYNDROME ASSOCIATION |
|
THE EHLERS-DANLOS SUPPORT UK |
|
LYNCH SYNDROME UK |
Podobné organizace global
Sjögren’s Foundation |
|
INTERNATIONAL SCLERODERMA NETWORK |
|
Kindness for Kimberlee |
|
STEVENS JOHNSON SYNDROME CANADA |
|
Sjogren's Society of Canada |
Podobně sociální sítě (896)
Triangl Markvartice, z.s.902 |
|
Jízda veteránů, z. s.897 |
|
FC Dolní Benešov z.s.900 |
|
Český rybářský svaz, z. s., místní organizace Orlová902 |
|
SLÁNSKÁ SCÉNA, z. s.900 |
Více Nemoci, poruchy a lékařské disciplíny jinde neuvedené.
Novinky
Fuel your body, hydrate your soul. 💧🍏 #nutritionandhydrationweek #SJSAwareness #HealthyLiving #HydrationMatters #NutritionForHealing (fb)
On #RareDiseaseDay, we stand together to raise awareness, support those affected, and advocate for research and treatment. Every voice matters in the fight for hope and healing. 💜 #HopeForRare #RareButNotAlone (fb)
Poslední komentáře
So important to spread awareness about SJS! Let’s make sure everyone knows the symptoms and the importance of reading drug leaflets. Together we can help save lives! 💙✨detail |
|
Thank you, SJS Awareness UK, for all the hard work you do to support survivors and their families! It’s crucial that we educate ourselves and each other about SJS/TEN. Keep up the amazing work! 🙌🏼❤️detail |
Poslední diskuze
What strategies can we implement to effectively raise awareness about Stevens-Johnson Syndrome among medical professionals and the general public?Odpovědí: 3, Naposledy před 1 den detail |
|
How can we improve support systems for survivors of SJS/TEN to help them navigate the emotional and psychological challenges following their experience?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Reviews
RM6 6AX
Místo
O společnosti
- G99, E21, B60, H12 -
Donate now Have you checked the DRUG LEAFLET . Be aware while you medicate. To prevent drug reaction make sure you read the leaflet each time. Are you a medical professional .
Nemoci, poruchy a lékařské disciplíny jinde neuvedené. Systémy komunitního zdravotnictví Dospělí, další vzdělávání Shromažďování finančních prostředků a/nebo distribuce finančních prostředků.
23 Vacancy
More Detail