Home - Haemophilia Wales
1158941
2014
CF14 2EH
haemophiliawales.org
haemophiliawales
Podobné organizace
UNITED KINGDOM THALASSAEMIA SOCIETY |
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THE HAEMOPHILIA SOCIETY |
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HAEMOCHROMATOSIS UK |
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HBDCA |
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HAEMSTAR: HAEMATOLOGY SPECIALTY TRAINING AUDIT AND RESEARCH |
Podobné organizace global
Haemophilia Foundation Wa Inc |
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Haemophilia Foundation NSW Inc |
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Haemophilia Foundation Queensland Inc. |
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Haemophilia Foundation Victoria Inc |
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Australian Haemophilia Centre Directors' Organisation Inc. |
Podobně sociální sítě (711)
Florbal Vsetín, z.s.712 |
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Spolek Stáj Tivani712 |
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Junák - český skaut, středisko Rudy Knotka Šumperk, z. s.712 |
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3HO Česká republika, z.s.713 |
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Cech českých vinařů z.s.714 |
Více Artritida
PROAUT, spolek pro podporu osob s autismemTroubsko |
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Klub afasie, z. s.Praha |
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Kuřík z.s. |
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Obyčejný život, z. s. |
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Rodinné centrum Podané srdce z.s. |
Novinky
On 9th July 2025 Sir Brian Langstaff Chair of the Infected Blood Inquiry will publish an additional report on the timeliness and adequacy of the Government's response to compensation. It is now over 2 years since the Inquiry's recommendations on compensation were published https://www.youtube.com/watch?v=ztS0KHobeT4 Blood Money by Wyre Davies and Sian Vivian tells the story of the scandal and the impact on individuals and families in Wales who continue to fight for justice. (fb)
Reminder: We are meeting at Singleton Botanical Gardens Swansea SA2 9BY at 10am tomorrow. If you are an adult with a bleeding disorder then please come along! (fb)
Poslední komentáře
So grateful for the incredible support Haemophilia Wales provides! It's amazing to see such a strong community come together for those living with bleeding disorders. 💙 #HaemophiliaAwareness #SupportEachOtherdetail |
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What an inspiring mission! Together, we can ensure that everyone affected by bleeding disorders has the care and advocacy they deserve. Let's keep pushing for change! 🙌 #BleedingDisorderAdvocacy #HaemophiliaWalesdetail |
Poslední diskuze
1. How can Haemophilia Wales enhance its advocacy efforts to raise awareness about the historical injustices faced by those infected with contaminated blood products in the 1970s and 1980s?Odpovědí: 3, Naposledy před 1 den detail |
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2. What innovative support programs could be implemented by Haemophilia Wales to better assist families and carers of individuals with bleeding disorders in navigating the healthcare system?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
CF14 2EH
O společnosti
- G51, E02, P01 -
Who Are We. Haemophilia Wales provides information support and advocacy to everyone with Haemophilia Von Willebrands and other bleeding disorders including their families and carers. In Wales there are approximately 900 people with an Inherited Bleeding Disorder Haemophilia is a lifelong condition it is therefore important that you and your child learn about the condition in order to enjoy a healthy life. Haemophilia is treatable and a child born with Haemophilia in Wales can look forward to a normal life expectancy and an excellent quality of life.
Artritida Správa a technická pomoc Aliance a organizace na podporu zájmů
