Action FCS

Nemoci, poruchy a lékařské disciplíny jinde neuvedené. / SW4 6NS /

Home - Action FCS is the UK charity for people affected by Familial Chylomicronaemia Syndrome (FCS)

Charity working to improve the lives of people affected by Familial Chylomicronaemia Syndrome (FCS), previously called LPLD Alliance Patient-led organisation for people with Familial Chylomicronaemia Syndrome, we were previously called LPLD Alliance. Raising awareness of Familial Chylomicronaemia Syndrome (FCS) and related conditions; educating patients, medical personnel and the public in general about FCS; supporting people with FCS and those affected by it to live a full, healthy and integrated life; advocating for access to excellent care and new medicines for all patients with FCS.
Upravit Kontaktovat
1165873
IČO
2016
Založeno
SW4 6NS
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actionfcs.org
Web
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Twitter (263)
actionFCS
Facebook (361)

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Novinky

13 čer
Action FCS

We're delighted to announce that Helga Davidson has joined the Action FCS board of trustees. Although having a long history of extremely high triglycerides Helga was only diagnosed after a severe pancreatic attack at the age of 48. Helga's working background was a family engineering business. But after her diagnosis she did a partial degree in Nutrition to gain knowledge on how to better manage her condition. Challenging herself daily to recreate her favourite meals as low in fat as possible. (fb)

23 bře
Action FCS

(fb)

Poslední komentáře

💜 Thank you, Action FCS, for all the amazing work you do to support those living with FCS! Your commitment to raising awareness and helping patients live healthy lives is truly inspiring. Together, we can spread the word about this rare condition! #RareDiseaseDay #FCS
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🌟 Love what you’re doing, Action FCS! It’s so important to shine a light on rare diseases like FCS. Let’s keep fighting for awareness and better support for everyone affected. 🌈💪 #FCSCommunity #SupportRareDiseases
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Poslední diskuze

1. What innovative strategies can we implement to raise awareness about Familial Chylomicronaemia Syndrome (FCS) within healthcare communities and the general public leading up to Rare Disease Day 2025?
Odpovědí: 3, Naposledy před 1 den detail
2. How can we better support families navigating the challenges of living with FCS, particularly in terms of dietary management and access to care resources?
Odpovědí: 3, Naposledy před 1 den detail

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O společnosti

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Action FCS is the UK charity for people affected by Familial Chylomicronaemia Syndrome FCS FCS is an ultrarare genetic condition. People with FCS cant eat fat as they dont have the enzyme which breaks it down or what enzyme they have doesnt work properly. Rare Disease Day 2025 Rare Disease Day 2025 is Friday 28 February. Add your support to everyone who is affected by a rare disease.

Nemoci, poruchy a lékařské disciplíny jinde neuvedené. Zdraví - Obecné a Rehabilitační N.E.C. Vzdělávání n.e.c. (jiné vzdělávání)
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