PTEN UK AND IRELAND PATIENT GROUP
PTEN UK & Ireland Patient Group
1172205
2017
RG27 8TT
ptenuki.org
ptenuki
ptenuki
Podobné organizace
THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED |
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PTEN RESEARCH FOUNDATION |
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RARE AUTOINFLAMMATORY CONDITIONS COMMUNITY - UK (RACC - UK) |
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TTPNETWORK |
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RARE DISEASE NURSE NETWORK |
Podobné organizace global
NEW ENGLAND CONNECTION FOR PKU AND ALLIED DISORDERS INC |
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PTEN Hamartoma Tumor Syndrome Foundation |
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Global Society of Rare Genitourinary Tumors Inc |
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Trpm3 Foundation |
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Channeling Hope Foundation |
Podobně sociální sítě (598)
EDVIA, zapsaný ústav rozvoje lidských zdrojů600 |
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SH ČMS - Sbor dobrovolných hasičů Hradištko599 |
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Unie výtvarných umělců Olomoucka, z.s.600 |
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Sebeobrana-czech z.s.601 |
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TJ Řepiště, z.s.600 |
Více Konkrétně pojmenované nemoci
Asociace polioPraha |
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PODEJ NÁM RUKU, z. s.Klatovy |
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Nadační fond Pozitivní životPraha |
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Pacienti IBD z.s.Praha |
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Máša z.s.Praha |
Novinky
📣 Speaker Spotlight: Professor Kristien Boelaert We’re thrilled to announce that Professor Kristien Boelaert will be joining us at the PTENUKI Patient Day next week! 🌟 Kristien is an internationally recognised expert in thyroid diseases and will be leading a breakout session on Thyroid Issues in PHTS — a must-attend for anyone navigating thyroid-related aspects of the syndrome. 👉 For more information on our other amazing speakers, don’t forget to check out our website! https://ptenuki.org/ptenuki-patient-day-2025/ #PTENUKI (fb)
We’re delighted to welcome Ken Upton, Independent SEND Advocate with Talking SENse!, to PTENUKI Patient Day 2025. Ken brings a wealth of experience supporting families navigating Special Educational Needs and Disabilities (SEND) systems, and he’s passionate about empowering parents and carers to advocate effectively. 🎓 Don’t miss his invaluable insights—there’s still time to sign up: (fb)
Poslední komentáře
So grateful for organizations like PTEN UK & Ireland who truly make a difference in the lives of those affected by PTEN. Together, we can raise awareness and support each other! 💙 #PTENSupportdetail |
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Looking forward to Patient Day 2025! It's great to see communities coming together to share knowledge and support for families impacted by PTEN. Let's spread the word! 🌈 #PatientDay2025 #PTENAwarenessdetail |
Poslední diskuze
- What are some of the most pressing challenges currently facing patients and families affected by PTEN/PHTS in the UK and Ireland, and how can we work together to address them?Odpovědí: 3, Naposledy před 1 den detail |
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Odpovědí: 3, Naposledy před 1 den detail |
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- How can we effectively raise awareness about PTEN Hamartoma Tumour Syndrome to ensure that newly diagnosed patients receive timely support and resources?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
RG27 8TT
O společnosti
- G80, E20, E30 -
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Konkrétně pojmenované nemoci Nemocnice a zařízení primární zdravotní péče Zdravotnická léčebná zařízení (převážně ambulantní)
