THE MADDI FOUNDATION
The Maddi Foundation - Help us beat SPG15
Maddi is fighting a rare form of MND. Please support our journey to a cure. Donate today 🙏🙏 We fund research to help develop treatments and hope ultimately to find a cure for Spastic Paraplegia Type 15 or SPG15.We aim to raise awareness of SPG15 disease by connecting clinicians, researchers and patients together and at Public Events.
1174374
IČO
2017
Založeno
CM13 1AB
Adresa
themaddifoundation.com
Web
MiracleForMaddi
Facebook (5677)
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Více Stipendia, finanční pomoc studentům, ceny
Poslední komentáře
💖 Every bit of support counts! Together, we can raise awareness and bring hope to those affected by SPG15. Let's help Maddi and others like her! 💪✨ #FightMND #MaddiFoundationdetail |
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Incredible work being done by The Maddi Foundation! 🌟 Let's come together and donate to fund vital research for SPG15. Your contribution can help make a difference in the lives of so many! 🙏❤️ #CureSPG15 #HopeForMaddidetail |
Poslední diskuze
1. What strategies can NGOs like The Maddi Foundation implement to raise awareness and funding for rare diseases, particularly those like SPG15 that often go unnoticed?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can advancements in gene therapy for conditions like SPG15 contribute to broader research and treatment strategies for other genetic disorders?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Reviews
CM13 1AB
Místo
O společnosti
- B82, H30, G03, E70 -
Help us beat SPG15 The Maddi Foundation is changing the path of rare disease. By working on finding a cure for SPG15 it could lead to more understanding of new ways to treat other diseases. ITV INTERVIEW WITH MADDI We would like to thank SPF for their help alongside The University of Sheffield for their hard work The Charity Our MissionEstablished in 2016 as the Save Our Maddi Appeal the Maddi Foundation emerged in response to Madeleine Thurgoods diagnosis of Hereditary Spastic Paraplegia 15 SPG15. CoFounder Carina Thurgood Maddis mother passionately advocated for raising awareness of SPG15 driving the Foundations commitment to advancing research and developing Gene Therapy for this rare genetic disease.
Stipendia, finanční pomoc studentům, ceny Výzkum rakoviny Profesionální společnosti a sdružení Programy veřejného zdraví
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