Home - The Ehlers Danlos Society
1180984
2018
EC4M 7JN
ehlers-danlos.com
ehlers.danlos
169306
Podobné organizace
HealthSense UK |
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THE EHLERS-DANLOS SUPPORT UK |
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MIND BODY EDS |
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THE HYPERMOBILITY SYNDROMES ASSOCIATION |
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SEDSCONNECTIVE |
Podobné organizace global
Center for Ehlers Danlos Syndrome Alliance Inc |
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EDS Guardians, Inc |
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Ehlers-Danlos Research Foundation |
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Eds Resource Network |
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EHLERS-DANLOS SOCIETY |
Podobná návštěvnost
Česká astronomická společnost |
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BioLib, z. s. |
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Nadační fond Dany a Emila Zátopkových |
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Občanské sdružení Britské listy, z.s. |
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JM - Net, z. s. |
Podobně sociální sítě (158298)
Novinky
Many people with Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD) also have a type of dysautonomia. There are different types of dysautonomia with different symptoms. Dysautonomia, also called autonomic dysfunction, is a group of disorders that affect the autonomic nervous system. People with EDS and HSD most commonly have a form of orthostatic intolerance. “Orthostasis” means to stand upright, so orthostatic intolerance refers to symptoms that occur due to standing up or being upright. The two most common types of orthostatic intolerance are: 1️⃣ Orthostatic hypotension (OH) — low blood pressure on being upright. 2️⃣ Postural orthostatic tachycardia syndrome (POTS) — an abnormal increase in heart rate when standing without a drop in blood pressure. Symptoms of dysautonomia include: ● Tachycardia (fast heart rate) ● Palpitations (feeling the heart racing or pounding) ● Hypotension (low blood pressure) ● Lightheadedness ● Presyncope (a sense of being about to faint) ● Syncope (fainting) ● Blurred vision 😶🌫️Brain fog (problems with concentration and memory) ● Headaches ● Chest pain ● Shakiness 💤Chronic fatigue ● Exercise intolerance and feeling worse after exercise ● Swelling and/or discoloration of the legs after standing for short periods of time ● Cold, discolored hands and feet ● Temperature dysregulation 🥵Sweating ● Sleep disturbance ● Gastrointestinal issues ● Nausea 🚽Bladder dysfunction Click the link to learn more about dysautonomia, how it's diagnosed, and management strategies to help: https://www.ehlers-danlos.com/dysautonomia/ #Dysautonomia #POTS #EhlersDanlosSyndrome #Hypermobility #HypermobilitySpectrumDisorder (fb)
The Ehlers-Danlos Society's global mission for EDS and HSD could receive a £2,000 boost with your help! 🧬👩🏽⚕️ 🦓 Nominate The Ehlers-Danlos Society in the Movement For Good Awards — You can nominate from anywhere in the world. Click here to nominate: https://movementforgood.com/index.php?cn=1180984&ct=health&i=1753097606-78228.jpg&utm_source=holiday+card&utm_medium=social&utm_campaign=M4G2025card&utm_id=M4G2025card#nominateACharity #TogetherWeDazzle (fb)
Poslední komentáře
🌟 Excited to participate in Acts of Awareness this May! Every little action counts, and I'm determined to help raise funds and awareness for the EDS and HSD community. Together, we can make a difference! 💜 #EDSAwarenessMonth #ActsOfAwarenessdetail |
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👩⚕️ As a health professional, I'm eager to deepen my understanding of EDS and HSD to better support my patients. Looking forward to the International Scientific Symposium in Toronto! Let's work together for a brighter future in research and care! 🌍✨ #EDS #HSD #ResearchAdvancementdetail |
Poslední diskuze
What are some effective ways individuals can participate in Acts of Awareness this May to support EDS and HSD initiatives?Odpovědí: 3, Naposledy před 1 den detail |
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How can healthcare professionals best utilize the research presented at the 2025 International Scientific Symposium to improve patient care for those with Ehlers-Danlos Syndromes?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
EC4M 7JN
O společnosti
- G60, G83, E20 -
I am an. Individual looking for advice and information on EDS or HSD support groups and the helpline. I am a. Health Pro looking to increase my knowledge of EDS HSD and research to better assist my patients.
Nemoci související s alergiemi Alzheimerova choroba Nemocnice a zařízení primární zdravotní péče