Peeps HIE Charity | HIE Awareness & Support

The only UK charity dedicated to supporting those touched by H.I.E. (Hypoxic-Ischaemic Encephalopathy) and raising awareness. Registered Charity Number 1179495. The only dedicated UK charity to support those affected by H.I.E. (Hypoxic-Ischaemic Encephalopathy). We support families across the UK who have been affected by HIE (hypoxic-ischaemic encephalopathy). This is done by providing information (such as via parent packs for those in neonatal intensive care units), signposting to other charities/support groups, organising activities, peer support, funding for equipment etc.
1179495
IČO
2018
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M12 6AE
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peeps-hie.org
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PeepsHie
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PEEPS

PEEPS (registered charity number 1179495) is a United Kingdom-based nonprofit organisation focused on supporting individuals and families affected by hypoxic-ischaemic encephalopathy (HIE), a neonatal brain injury caused by oxygen deprivation. Founded in 2018 by Sarah Land and her husband Steve, the charity originated from their personal experience following their daughter Heidi’s HIE diagnosis at birth[1][3].

Mission and activities

PEEPS provides emotional, practical, and financial support to families navigating HIE-related challenges. Key initiatives include:

  • Information provision: Distribution of parent packs in neonatal intensive care units (NICUs), translated resources, and access to peer networks[1][5].
  • Peer support: Online forums, counselling services, and community-building events to reduce isolation among affected families[1][2].
  • Financial assistance: Funding for specialised equipment, therapy, and adaptive technologies[5].
  • Awareness campaigns: Events and educational efforts to increase public understanding of HIE[2].

Governance

The organisation operates under a trustee structure, with six trustees overseeing governance[5]. Activities span the UK, including England, Wales, Scotland, and Northern Ireland, with 18 regular volunteers supporting operations as of 2024[5].

Impact

PEEPS emphasises early intervention, aiming to connect families with resources during critical periods post-diagnosis. Its work addresses gaps in HIE-specific support, particularly through partnerships with healthcare providers and advocacy for long-term disability management[1][3][5].


Note: This article adheres to Wikipedia’s manual of style, excluding direct contact details and promotional language.

[1] https://www.peeps-hie.org/who-we-are/ [2] https://www.peeps-hie.org [3] https://register-of-charities.charitycommission.gov.uk/charity-details/?regid=1179495&subid=0 [4] https://www.peeple.org.uk/peep-groups-overview [5] https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/5124866/full-print

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Poslední komentáře

I'm so grateful for the amazing support that PEEPS provides to families dealing with H.I.E. ❤️ Your dedication makes such a difference in our lives!
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This charity is a beacon of hope for so many! Let’s spread the word and raise awareness about H.I.E. together! 🌟 #SupportHIE #PEEPS
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Poslední diskuze

How can we effectively raise awareness about Hypoxic-Ischaemic Encephalopathy within our communities to ensure more families know about available support resources?
Odpovědí: 3, Naposledy před 1 den detail
What types of fundraising events or activities have been most successful in engaging the public's interest and support for H.I.E. awareness and assistance?
Odpovědí: 3, Naposledy před 1 den detail

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M12 6AE
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O společnosti

- E21, P20, F30 -

Support for parents families friends of those who have experienced an H. I. E. event HypoxicIschaemic Encephalopathy Upcoming Events From awareness fundraising events to community dropins support sessions check out our upcoming events related to H.

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