Princess, our brilliant Ambassador and future Doctor, currently studying medicine at @livuni Princess write down her reflections on being an Ambassador, running an awareness event and her own take aways from a talk by @thisisdanjeffries Princess astutely reflected that Dan’s story of going undiagnosed with #acromegaly “demonstrated that the barrier is not the provision of knowledge, but the gradual narrowing of thinking over time” Princess’ blog is a really interesting and short read so make sure you head over and benefit from all her wisdom! Thank you to Princess and all our Ambassadors for helping Medics for Rare Disease achieve its mission to shape a medical profession that can provide timely diagnosis and excellent care to people living with rare disease. Go to link tree or www.m4rd.org/news @livunimedicine #raredisease #healthequity #medicalstudent #medicalschool #thinkrare #thinkagain (fb)

In September 2025 the NHS England and The Royal College of GPs announced an initiative called Jess’ Rule in memory of Jessica Brady. Jessica’s symptoms of adenocarcinoma went unrecognised until the point where it was so advanced her life could not be saved. UK Government said “Patients with a potentially deadly illness will be diagnosed sooner thanks to a new life-saving patient safety initiative called Jess’s Rule.” We absolutely support a “think again” approach to diagnosis when symptoms go unexplained or treatment isn’t working as expected. But will Jess’ Rule solve the issue? Emma Kinloch, from Salivary Gland Cancer UK, explains that simply asking GPs to “think again” is only part of the barriers. How are GPs who think again being supported? Do they know what to do when they aren’t sure? Today is Salivary Gland Cancer Day! Check out our link tree to find out more! #salivaryglandcancerday #salivaryglandcancer #rarecancer #raredisease #jessrule @royalcollegeofgps @nhsengland @sgcanceruk (fb)