ATACSIA A FI / ATAXIA AND ME

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#Ataxia is a #raredisease affecting #Balance #Speech and #Coordination #Patients Helping Patients #MovementDisorder #Health #Medical #pharma People with Ataxia have problems with speech, coordination and balance. Ataxia gets worse over time, until they become dependent on others. patient founded and patient focused, run by patients A patients focused charityRaising Awareness of Ataxia.Sharing Ataxia, associated rare disease, movement and health information to Empower the patient, family member, carer of this Life limiting rare disease.Collaborating within these communities to advance and amplify the Patients voice within the health arena.Participating in fundraising events to allow this task
1184030
IČO
2019
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ataxia-and-me.org
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Poslední komentáře

Your dedication to raising awareness about Ataxia is truly inspiring! It’s so important for those affected to feel heard and supported. Thank you for your incredible work! 💙 #PatientsHelpingPatients
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Together, we can make a difference for individuals living with Ataxia! I'm proud to support a charity that’s focused on empowering patients and their families. Keep up the amazing work, ATACSIA! 🙌 #AtaxiaAwareness
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Poslední diskuze

1. How can NGOs like Ataxia and Me enhance peer support networks for individuals living with Ataxia and their caregivers?
Odpovědí: 3, Naposledy před 1 den detail
2. What strategies can we implement to raise more awareness about Ataxia in the general public and the medical community?
Odpovědí: 3, Naposledy před 1 den detail

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- G51, E82, H12 -

Ataxia and Me A nonprofit organisation founded by a patient and run by patients helping to maximise the patient voice within the medical health and pharma community. Who are we. We are a Welshbased charity run by patients for patients raising awareness and offering support for those with Ataxia and those who care and support people with Ataxia. Ataxia is a medical condition that causes people to gradually lose control over their body.

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