With just 2 days until the Dash, tonight we repost our 2024 reflections, in case you missed it first time round. And, of course, a reminder of why we do what we do. Together we can End Duchenne 💙 ‘As 2025 gets us off to a fast start, we wanted to take a brief moment to reflect on 2024. First and foremost, thank you. To everyone who has donated, supported, volunteered, or given their time—we are immensely grateful. Your generosity gives us hope & fuels our determination to push for the future Connor and boys like him deserve. 2024 was filled with memorable moments, and we’d like to highlight a few. Our heartfelt thanks goes to a special family that have been supporting Connor since the very day of his diagnosis. The kindness their family has shown Connor is unwavering. Part of that family is Pauline, who now supports us from the skies. We were honored she chose Chasing Connor’s Cure for her funeral donations. Her legacy of love and support continues to inspire us all. Thank you so much 🙏 xx A huge thank you to Team Connor for another unforgettable Duchenne Dash. Not only did you ride from London to Paris in just 24 hours, but you also covered an incredible number of miles in training. Together, we helped raise over £821,588—a remarkable sum that’s already making a difference in funding critical research & support. But 2024 has also brought challenges we wish we didn’t have to face. This year, Connor transitioned to using a wheelchair full time—a milestone we knew would come but hoped to delay. Despite this, Connor continues to amaze us with his strength, determination, & cheeky spirit. 💙 His resilience fuels everything we do to fight Duchenne & push for a better future. Now, as we look ahead to 2025, the fight continues—& we need your help. 🚴‍♂️ The Duchenne Dash is more than just a ride; it’s a movement. It’s about pushing limits, building a community, & creating hope for families like ours. Thank you for being by our side this year and we can’t wait to see what we’ll achieve in 2025 and beyond 🙌🏻’ (fb)

Many of you have donated to us many times before and we are so grateful for all the support we have received over the years. The money you have given really has made a difference! Over the last two years, 2 new drugs to treat DMD have become available. @duchenneuk (using the money raised from the Dash) has been the driving force behind these developments and this has only been possible from the donations it receives. This infographic shows the many stages of the process to get Vamorolone, an alternative to steroids, implemented by the NHS. This is the work that goes on every single day by Duchenne UK to try to improve the lives of those living with Duchenne. While there is still no cure for Duchenne, there is now a drug called Givinostat which has been proven to slow the progression of the disease. Unfortunately, even though this medicine should be available to all, it isn’t yet. Duchenne UK is working around the clock to support families, work with NHS Trusts and lobby MPs so that more boys with Duchenne can access this drug. By feeding into a large and powerful charity, we can ensure that your donations have the biggest impact. And this is why we ride to Paris again in just 3 days. For Connor and boys like him. If you are able to support us again, the link is in the bio. Please look out for updates on how our journey to Paris is going on our socials across the weekend 💙 musculardystrophy #duchenneawareness #connorcrawford #endduchenne #londontoparisin24hours #charity #fundraising #duchennedash #cycling #chasingconnorscure #raredisease #nevergivingup #fightingforacureforms (fb)