JON SHAW FOUNDATION
Jon Shaw Foundation | Supporting young people with epilepsy, improving the mental health of bereaved siblings and promoting the awareness of SUDEP.
1189073
2020
CW1 4NE
jonshawfoundation.org
FoundationJon
JonShaw19
2091657
Jon Shaw Foundation
The Jon Shaw Foundation is a UK-based nonprofit organization, registered with the charity number 1189073. It focuses primarily on supporting young people diagnosed with epilepsy, aiming to improve their quality of life and independence.
Mission
The organization's mission is to promote and protect the physical and mental health of young individuals aged 0 to 25 who have been diagnosed with epilepsy. Additionally, it provides support to the families of these young people, ensuring they receive the necessary care and peace of mind[3][4].
Support and Activities
The foundation offers several forms of support:
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Epilepsy Monitors: The foundation provides funding for specific epilepsy monitors, such as the Embrace 2, Alert IT Pulse Companion, Medpage MP5V2, and Safety Pillows, to help young people manage their epilepsy safely and effectively[1].
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Counselling Services: It offers face-to-face and online counselling services, particularly for bereaved siblings and close friends. These services are designed to enhance emotional well-being and provide support for stress, trauma, bereavement, anxiety, and addiction[2].
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Affiliations and Fundraising: The Jon Shaw Foundation collaborates with other organizations and participates in fundraising events, such as the Tough Mudder UK, to raise awareness and funds for its cause. This includes providing opportunities for individuals to join fundraising teams and participate in events across the UK[1].
Goals
The foundation's overarching goal is to ensure that young people with epilepsy can live independently and safely. It also works to improve the mental health of bereaved siblings and close friends, fostering a supportive environment for those affected by epilepsy[1][5].
Partnerships
The Jon Shaw Foundation partners with organizations like MedicAlert to offer support services, providing members with peace of mind through MedicAlert memberships. Members can use a unique foundation code to receive their first year's membership free along with additional discounts[2].
Overall, the Jon Shaw Foundation plays a vital role in the UK by addressing the needs of young people with epilepsy and their families, promoting a better quality of life through its support services and community involvement.
[1] https://jonshawfoundation.org [2] https://jonshawfoundation.org/support-we-offer/ [3] https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/5152386 [4] https://superkind.org/charity/jon-shaw-foundation [5] https://www.medicalert.org.uk/the-jon-shaw-foundation/
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Novinky
Reaching out to siblings and close friends who have lost a love one and struggling to manage the trauma alone. If the loss was due to an accident, trauma, or suicide, was it sudden or after a long illness it doesn’t matter, we are here. @sandbachnews @CreweNub @nantwichnews https://t.co/yNzNet3ZtX (tw)
The team at The White Lion are in training for this years mega stomp for JSF, 70 miles over 2 days, Manchester to Crewe, via Runcorn, Frodsham, Chester and Nantwich. They have just opened the just giving page for donations. If you can spare ££ thank you, if not then please share https://t.co/ZBVZTART9Q (tw)
Poslední komentáře
💜 So proud of the incredible work the Jon Shaw Foundation is doing! Supporting young people with epilepsy and their families is so important. Let's spread awareness and make a difference together! #EpilepsyAwareness #JonShawFoundationdetail |
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🌟 Exciting news about the Silver Bond and London Marathons! Let’s rally together and make these events a huge success for a fantastic cause! Can't wait to see everyone get involved! #RunForJon #CommunitySupportdetail |
Poslední diskuze
What strategies can we implement to raise awareness about SUDEP and its impact on young people living with epilepsy?Odpovědí: 3, Naposledy před 1 den detail |
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How can we better support the mental health needs of bereaved siblings and friends in our community through our activities and initiatives?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
CW1 4NE
O společnosti
- G80, F30, F20, F29 -
SUPPORTING young people living with epilepsy IMPROVING the mental health of bereaved siblings and close friends PROMOTING awareness of SUDEP Sudden Unexpected Death in EPilepsy Trustees needed to join our board to help develop our charity We are looking for volunteers to help with our fundraising events and social activities for bereaved siblings and friends. If anyone has a minibus and willing to drive us or loan it to us occasionally that would be great. STOP PRESS Read our latest news and events here We have been allocated a Silver Bond We are thrilled to announce that we have been allocated a silver bond for 2026. Which means that we are guaranteed 2 places in 4 London Marathons in 2026 20272028 and 2029.
Konkrétně pojmenované nemoci Léčba duševního zdraví Zneužívání alkoholu, drog a látek, závislost, prevence a léčba
