H-ABC FOUNDATION UK
H-ABC Foundation | Cure
Our mission is to improve lives of children affected by h-abc (hypomyelination with atrophy of the basal ganglion and cerebellum) through personalised therapy H-abc Foundation UK aims to raise awareness of the rare disease H-abc, fund research into a cure and treatment and support families that have received a diagnosis.
1190390
IČO
2020
Založeno
RG4 7BU
Adresa
habcfoundationuk.co.uk
Web
habc_uk
Twitter (802)
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Více Nemoci nervů, svalů a kostí.
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Novinky
10 dub
RT @habcfundraising: Another amazing challenge from Darren, what an incredible man! 🏃👏🏻🏃 https://t.co/dqy4b9WdO4 (tw)
10 dub
RT @AnnaGearyTV: Coming up @itvlondon Former soldier @darrenhardy2880 reached Hyde Park this afternoon having run 300km in 100 hours. He… (tw)
Poslední komentáře
Every child's life is precious, and the work H-ABC Foundation is doing is incredible! Let's come together to support these brave kids and their families. 💖 #FindTheCure #HABCFoundationdetail |
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I'm so inspired by the stories of resilience from the H-ABC community! Donating and spreading awareness is the least we can do to help these amazing children. Together, we can make a difference! 🙌 #DonateForHABC #StrongerTogetherdetail |
Poslední diskuze
How can we better engage the community to raise awareness and support for children affected by H-ABC?Odpovědí: 3, Naposledy před 1 den detail |
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What are the latest advancements in gene therapy that could potentially benefit children with hypomyelination with atrophy of the basal ganglia and cerebellum?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Reviews
RG4 7BU
Místo
O společnosti
- G50, H01, E01 -
HOME The Foundation HABC Community Map Gene Omnibus Medical Research Patient Data Collection Contact More. HELP FINDTHE CURE FOR HABC EMBRACE DONATE CURE. WHATISHABC HABC stands for Hypomyelination with atrophy of the basal ganglia and cerebellum click below to find out more. MEET OURFAMILY Across the world over 150 children have been diagnosed with Habc.
Nemoci nervů, svalů a kostí. Alianční a advokační organizace Alianční/advokační organizace
23 Vacancy
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