- G51, E22, H12 -

Rare Disease Nurse Network Sharing knowledge creating networks and supporting care in rare diseases. At RDNN we believe that there is a huge need for additional nurse support for all those affected by rare disease. We are rare disease nurses genetic counsellors parents to children with rare disease people that have rare diseases ourselves or people who are passionate about making a positive difference. Our aim is to become the Macmillan of Rare Disease we are determined to create better services for those affected by rare diseases and improved information for nurses and other healthcare professionals to help them provide stronger support for their patients.