Keep Me Breathing – Driving research for CCHS treatment worldwide

Working relentlessly to make breakthroughs in CCHS research, get treatments faster and find a cure. Developing a treatment for a disease with no cure and no treatment beyond artificial life support Keep Me Breathing is a patient, scientific and engineering led organisation which helps and supports people with Congenital Central Hypoventilation Syndrome (CCHS) a rare genetic disease. It helps people who suffer from CCHS and we receive worldwide enquiries. We are involved in research with the University of Cambridge Consulting Society to find a treatment for CCHS.
1201757
IČO
2023
Založeno
BN3 7JH
Adresa
keepmebreathing.com
Web
keepmebreathtwt
Twitter (9)
keepmebreathingfb
Facebook (283)

Novinky

Poslední komentáře

🌟 Your work is truly inspiring! The dedication to developing a cure for CCHS gives hope to so many families. I've shared your page and will continue to support your mission! 💙 #KeepMeBreathing
detail
❤️ It's amazing to see such incredible efforts going into research for CCHS. A world where patients can breathe freely is a dream worth fighting for! Count me in for support! 🌍🙌 #CCHSAwareness
detail

Poslední diskuze

1. What are some innovative approaches that could accelerate research and development for treatments of CCHS beyond the current phrenic nerve pacing device?
Odpovědí: 3, Naposledy před 1 den detail
2. How can we effectively raise awareness about CCHS and its impact on patients, especially in communities where resources are limited?
Odpovědí: 3, Naposledy před 1 den detail

V okolí

Kontaktovat
KEEP ME BREATHING logo
KEEP ME BREATHING
+ Sledovat
4.5
Reviews
BN3 7JH
Místo
O společnosti

- G20, H99, I30, H30 -

We are a high impact charity. 100 of donations go directly towards discovering and developing treatments and cures for CCHS sufferers. We are developing a treatment to change and to save the lives of CCHS patients in a world where such a treatment does not exist. We will do whatever it takes.

Vrozené vady, genetická onemocnění Ostatní lékařský výzkum j. n. (jiné než specifikované) Nápravná zařízení j. n. (jiné než specifikované) Výzkum rakoviny
23 Vacancy More Detail