Keep Me Breathing – Driving research for CCHS treatment worldwide
1201757
2023
BN3 7JH
keepmebreathing.com
keepmebreathtwt
keepmebreathingfb
Podobné organizace
THE MEDICALERT FOUNDATION |
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HUMAN ORGAN PRESERVATION RESEARCH TRUST |
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HEARTLIFE |
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CCHS UK |
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JUST BREATHE CORNWALL |
Podobné organizace global
Heart Care International Inc |
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Breathing New Life |
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Project Heart |
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Hearth Path Inc |
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A Piece of My Heart Foundation |
Podobně sociální sítě (292)
TJ Tesla Pardubice, z.s.293 |
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Alumni GJK z. s.294 |
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Charita Studénka293 |
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Charita Šumperk293 |
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SKOK J. Hradec, z.s.294 |
Více Vrozené vady, genetická onemocnění
DiaKar, z. ú.Karlovy Vary |
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Český institut biosyntetické psychoterapie, z.ú.Praha |
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Parkinson-Help z.s.Praha |
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Občanské sdružení Imunodeficitních pacientů HAE / AAE z.s.Brno |
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Hemojunior, z.s.Praha |
Novinky
🐉💨 Three Boats. One Cause. Let’s Race! 💨🐉 We’re hitting the water at full force this August! Join Keep Me Breathing as we take on the Arundel Festival Dragon Boat Race with not one, but THREE fearless boats paddling for children who stop breathing every time they fall asleep. 📅 Friday 23 August 11am - 3pm 📍Town Quay, Arundel If you’d like to join one of our remaining two boats you can book yourself a place here: https://fienta.com/kmb-dragon (Link also in bio) Expect big energy, big splashes, and a whole heap of fun and camaraderie as our crews battle it out! 🌬️ Tickets are £38 and every stroke helps us move closer to new treatments for CCHS – a rare condition that makes automatic breathing impossible during sleep. 💙 Come cheer us on, get involved, and help us keep every child breathing. #KeepMeBreathing #DragonBoatRace #ArundelFestival2025 #PaddleForACause #TeamBreath #CCHS #RareDiseaseAwareness #CharityRace #ArundelEvents #TwoBoatsOneMission @arundelfestival (fb)
🏃♀️💨 Lace up for a life-changing cause! We’ve got charity places available for both the Brighton & Hove 10K and the Brighton Marathon - and we’d love YOU on our team 💙 Whether you’re a seasoned runner or taking on your first race, every mile you run helps Keep Me Breathing in our mission to support children living with CCHS - a rare condition that means they stop breathing every time they fall asleep. ✨ We’re on a mission to bring our CCHS treatments through as fast as possible and our marathon events are always an INCREDIBLE atmosphere and so successful in fundraising. We’d love for you to join us! You’ll be part of an amazing, warm and friendly team and if you have friends or family who’d like to run for us too they absolutely can - everyone is welcome! 🎽 If you’d like to join Team Keep Me Breathing in April 2026, please send a DM or get in touch with steph@keepmebreathing.com #BrightonMarathon #Brighton10K #KeepMeBreathing #RunForACause #CharityRunner #MakeItCount #CCHS #RunWithHeart #cchsawareness (fb)
Poslední komentáře
🌟 Your work is truly inspiring! The dedication to developing a cure for CCHS gives hope to so many families. I've shared your page and will continue to support your mission! 💙 #KeepMeBreathingdetail |
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❤️ It's amazing to see such incredible efforts going into research for CCHS. A world where patients can breathe freely is a dream worth fighting for! Count me in for support! 🌍🙌 #CCHSAwarenessdetail |
Poslední diskuze
1. What are some innovative approaches that could accelerate research and development for treatments of CCHS beyond the current phrenic nerve pacing device?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can we effectively raise awareness about CCHS and its impact on patients, especially in communities where resources are limited?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
BN3 7JH
O společnosti
- G20, H99, I30, H30 -
We are a high impact charity. 100 of donations go directly towards discovering and developing treatments and cures for CCHS sufferers. We are developing a treatment to change and to save the lives of CCHS patients in a world where such a treatment does not exist. We will do whatever it takes.
Vrozené vady, genetická onemocnění Ostatní lékařský výzkum j. n. (jiné než specifikované) Nápravná zařízení j. n. (jiné než specifikované) Výzkum rakoviny